Invisible Chaos - a Column by Athena Merritt

lung care, insecurities, employment, managing a disease

Athena, a former journalist and Pennsylvania native, was diagnosed with sarcoidosis in 2002. She’s admittedly addicted to books, Marvel, and football. She tackles life with humor, passion and curiosity, and hopes to reach others through her writing.

Agony: A Symphony of Aches

Pain throws down the gauntlet the moment I wake up in the morning. As I’m lying in bed, taking stock of my symphony of aches, pain sends its troops with a message: “Pull the covers back up and maybe we’ll show you mercy. But we make no promises if you…

My Playbook for Battling Through Setbacks

If the proverb “misery loves company” holds true, my brother, Antony, and I will be inseparable this NFL season. On Sept. 15, we watched the quarterbacks of our favorite teams leave the field with injuries, taking with them the New Orleans Saints and Pittsburgh Steelers’ favorable Super Bowl odds.

My Advice to Sarcoidosis Freshmen

When I think of the nearly 20 million students projected to attend college this fall, what comes to mind are the freshmen stepping into uncharted territory. As my niece, Jocelyn, put it, “You go from being at the top of your game senior year of high school to being at the…

Taking a Preventive Approach Can Lead to Better Overall Health

Attending medical appointments is routine when battling active sarcoidosis. But we stand to benefit most if we see our doctors consistently, not just when we’re ill, but also when we’re well. Lifestyle choices such as exercising regularly, eating healthfully, getting adequate sleep, and avoiding smoking or overindulging in alcohol can…

Stress and Toxic Emotions Impact My Sarcoidosis

It’s easy to feel grateful when everything is going your way, but when you hit a rough patch, it helps to count your blessings. Stress has a clear impact on health and was the last thing I needed, but life’s problems arrive unexpectedly. Over the past two weeks, I…

Find Your Motivation in Enjoyment

I recently met a newly retired teacher at the laundromat. I was holding a book I had loved for the first 200 pages, but then lost interest in. She gave me the same advice she gave students who complained about boring books: Don’t finish it. Her colleagues always urged the…

Why I Said Goodbye to Twitter

Last month, I decided to take a break from Twitter. It is the only social media site I use, despite the grumblings of Facebook-obsessed family and friends. My only regret is not doing it sooner. Ditching Twitter wasn’t as hard as I expected. When I told my 20-year-old niece about…

The High Cost of Waiting for Generic Alternatives

Weeks after getting a script for what I hoped would be a cheaper alternative to Restasis (cyclosporine emulsion), I was reminded of why so many prescription medications are unaffordable. Three pharmaceutical companies recently agreed to pay California nearly $70 million to settle allegations that they paid to delay…

My Love-Hate Relationship with Prednisone

Twice in the past month, a charley horse in my right calf has ripped me from blissful sleep. Even though prednisone wasn’t to blame for the agonizing 4 a.m. wake-up calls, it’s the first thing I thought about while lying in bed, writhing in pain. I’ve lost count of…

My Journey from Fan to Fanatic

Finding an escape in football Prior to my sarcoidosis diagnosis, the National Football League (NFL) got my attention once a year when the Super Bowl aired. That only changed if my hometown team had a shot of making it to the big game; then, I would tune in for the…