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Recent Posts

• Group Focuses on Rare Disease Clinical Trial Participation
• Phase 2 Trial of Inhaled Therapy Aviptadil OK’d in Germany
• ‘It’s Hard to Be What You Can’t See’
• ‘Running for Rare’: NORD a Charity Partner of 2021 NYC Marathon
• 19 Vials of Blood Made Me Fall in Love With My Doctor
• Researchers Seek Biomarkers to Predict ATYR1923’s Effectiveness
• ‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases
• I Don’t Have Anything to Prove While Living With Sarcoidosis
• The Grief and Relief of Being Diagnosed With Sarcoidosis
• Register Now for Global Genes’ RARE Patient Advocacy Summit