Athena, a former journalist and Pennsylvania native, was diagnosed with sarcoidosis in 2002. She’s admittedly addicted to books, Marvel, and football. She tackles life with humor, passion and curiosity, and hopes to reach others through her writing.When I was fired years ago while battling sarcoidosis on unpaid sick leave, I was blindsided. The termination letter reached me at the end of the month, at the same time that my health benefits were stopped. I ended up in a similar situation as the estimated 5.4 million workers…
Sarcoidosis involves the lungs in most cases, so you may head to a pulmonologist and consider your care handled. I did, but it was only the beginning of sitting on the crinkly, white paper of examining room tables looking for answers. The first lesson I learned was that relying on…
With 92 degrees forecast, I headed out for a walk Thursday morning to beat the heat. Within minutes, I had to quit because of a sarcoidosis-related condition that required stubbornness to get diagnosed. Trudging home, fearing I would faint, I recalled the physician who told me, “Not everything is sarcoidosis,”…
My Fourth of July celebrations always include barbecue, but not this year. I made the leap to a vegetarian diet on May 23. I’m already seeing benefits from the move, which has given me the willpower to remain meat-free. It was tested on the most popular holiday…
With stifling June heat and pollen cleared by rainfall, I opened my windows. Drivers finished their workdays and inched forward in traffic outside my home. Within minutes, gentle breezes carried exhaust fumes inside. I thought that by living two stories up I would escape car pollution, a common…
A pile of boards and bolts stood before me as the first inkling of doubt crept in. Gathering what tools I could find — a small hammer and two old screwdrivers — didn’t boost my confidence. It was seven steps to creation. What it turned out to be was a…
I’ve avoided others throughout the pandemic because of my sarcoidosis. I had thought that if I ever ditched social distancing, it would be to embrace family, but it wasn’t. The first person to touch me since March was a mammography technologist who positioned me for a procedure that was…
An employer once asked me what was the one wish I wanted granted. Having battled sarcoidosis for years while in the workforce, the answer came easy. I asked for the option to telecommute. At the time, my wish didn’t come true. June 11 is National Work From Home…
I spent the first hours of April poring through television news in the U.S. Not a single mention of Sarcoidosis Awareness Month for my efforts. I did see a bus advertising it roll by in the background of a live broadcast in Philadelphia. I smiled because that’s life with a…
Sometimes in relationships flaws become too glaring to ignore, which either leads to compromise or goodbye. That is now the case in my long love affair with meat. I’ve made sacrifices over the years. My dates with the bad boys (red meat) aren’t nearly as frequent now.
Get regular updates to your inbox.