Invisible Chaos - a Column by Athena Merritt

lung care, insecurities, employment, managing a disease

Athena, a former journalist and Pennsylvania native, was diagnosed with sarcoidosis in 2002. She’s admittedly addicted to books, Marvel, and football. She tackles life with humor, passion and curiosity, and hopes to reach others through her writing.

Small Fiber Neuropathy Is Going Undiagnosed in Sarcoidosis

With 92 degrees forecast, I headed out for a walk Thursday morning to beat the heat. Within minutes, I had to quit because of a sarcoidosis-related condition that required stubbornness to get diagnosed. Trudging home, fearing I would faint, I recalled the physician who told me, “Not everything is sarcoidosis,”…

Breathing Polluted Air Is the Deadly Norm for Many

With stifling June heat and pollen cleared by rainfall, I opened my windows. Drivers finished their workdays and inched forward in traffic outside my home. Within minutes, gentle breezes carried exhaust fumes inside. I thought that by living two stories up I would escape car pollution, a common…

Putting Fears Aside to Resume Crucial Healthcare

I’ve avoided others throughout the pandemic because of my sarcoidosis. I had thought that if I ever ditched social distancing, it would be to embrace family, but it wasn’t. The first person to touch me since March was a mammography technologist who positioned me for a procedure that was…

Sarcoidosis Progress Continues Behind the Scenes

I spent the first hours of April poring through television news in the U.S. Not a single mention of Sarcoidosis Awareness Month for my efforts. I did see a bus advertising it roll by in the background of a live broadcast in Philadelphia. I smiled because that’s life with a…

My Love Affair with Meat Hits a Rocky Patch

Sometimes in relationships flaws become too glaring to ignore, which either leads to compromise or goodbye. That is now the case in my long love affair with meat.  I’ve made sacrifices over the years. My dates with the bad boys (red meat) aren’t nearly as frequent now.