Yesterday, my doctor cleared me to return to the office, effectively ending my COVID-19 isolation. After testing positive more than two weeks ago, and feeling quite sluggish for several days beforehand, yesterday’s at-home test came back negative. What a relief. Thankfully, as I previously mentioned, I was able…
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It’s easy to forget what’s most important when living with a chronic health condition. I reflect on this often, especially when I’m working out at the gym or trying to do “normal” activities. Achieving a sense of normalcy with sarcoidosis is difficult, especially during a pandemic. A shifting sense…
My last doctor’s appointment of 2021 was on Dec. 30 and involved a six-minute walk test and a follow-up with my pulmonologist. The walk test didn’t seem to go well, as I required more supplemental oxygen than I usually do while working out at the gym. I explained this to…
We’re all familiar with the evolutionary fight-or-flight response. When faced with stress or danger, we go through physiological changes that enable us to either battle a predator (fight) or escape the situation (flight). However, there is another option, although we probably wouldn’t choose it willingly: to freeze. That’s…
“Of all the forms of inequality, injustice in healthcare is the most shocking and inhumane,” Martin Luther King Jr. said in 1966. I have COVID-19. As of this writing, I am one of 326 million people who have contracted this disease worldwide. As a pulmonary sarcoidosis fighter who…
Happy New Year! By now, we’ve all hopefully recovered from the holidays and are starting to get into the groove of 2022, hoping and planning for a better year. The recovery may be a little easier this year, as celebrations have looked different since COVID-19 took over the world. We’ve…
“Calvin, put that doughnut down!” someone said to me about nine years ago, poking my stomach like I was the Pillsbury Doughboy. It was a funny joke that made me laugh, but it was also true. Over time, I had gained quite a bit of weight and didn’t…
I go to the gym because I know it’s good for me to stay active and to get some physical exercise. Recently, I found out that it also helps me trust myself to take charge of my own well-being. I was fortunate to have participated in…
Today is my infusion day, and I’m excited and hopeful. I’ve been taking Inflectra (infliximab-dyyb) for about four months. Before that, I was on Remicade (infliximab), until my insurance company suddenly stopped approving it, compelling me to switch. The U.S. Food and Drug Administration considers the two to…
Like a coin, there are two sides to every story. A disagreement involves two different perspectives. A face has two cheeks. And sarcoidosis has two faces. I was reminded of this while helping an old friend and his son last week. My friend called me two weeks ago and…
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- Atyr to discuss efzofitimod’s future with FDA after Phase 3 sarcoidosis trial
- How do you celebrate Autoimmune Awareness Month?
- New congressional caucus to advocate for sarcoidosis research, funding
- Free virtual conference aims to empower sarcoidosis community