“Of all the forms of inequality, injustice in healthcare is the most shocking and inhumane,” Martin Luther King Jr. said in 1966. I have COVID-19. As of this writing, I am one of 326 million people who have contracted this disease worldwide. As a pulmonary sarcoidosis fighter who…
Columns
Happy New Year! By now, we’ve all hopefully recovered from the holidays and are starting to get into the groove of 2022, hoping and planning for a better year. The recovery may be a little easier this year, as celebrations have looked different since COVID-19 took over the world. We’ve…
“Calvin, put that doughnut down!” someone said to me about nine years ago, poking my stomach like I was the Pillsbury Doughboy. It was a funny joke that made me laugh, but it was also true. Over time, I had gained quite a bit of weight and didn’t…
I go to the gym because I know it’s good for me to stay active and to get some physical exercise. Recently, I found out that it also helps me trust myself to take charge of my own well-being. I was fortunate to have participated in…
Today is my infusion day, and I’m excited and hopeful. I’ve been taking Inflectra (infliximab-dyyb) for about four months. Before that, I was on Remicade (infliximab), until my insurance company suddenly stopped approving it, compelling me to switch. The U.S. Food and Drug Administration considers the two to…
Like a coin, there are two sides to every story. A disagreement involves two different perspectives. A face has two cheeks. And sarcoidosis has two faces. I was reminded of this while helping an old friend and his son last week. My friend called me two weeks ago and…
I’ve been reading through my recent columns, and I noticed that I frequently mention how tremendously helpful therapy is. There are a few reasons for that. When I started my blog in 2010, my goal was to help people. I thought that sharing how I got through difficult times…
This month marks two and a half years that I’ve lived in New York City after moving here from Maryland. Although we’ve been living amid the COVID-19 pandemic for much of that time, I can certainly see why there are so many songs about this city. It is a…
“I am thankful to all those who said no. It’s because of them, I did it myself.” — Wayne W. Dyer Now that we’re approaching the thick of the holiday season, it’s time for us sarcoidosis warriors to be thankful for what we have and what…
I’ve never been very good with boundaries. I’ll respect yours, sure. But when it comes to setting my own and sticking to them, not so much. Over the years, this has taken its toll on relationships, employment, and even my health. Kerry at Disney World with her mobility…
Recent Posts
- Sarcoidosis and ILD burden rising globally, new analysis finds
- At high dose, brepocitinib eases symptoms of sarcoidosis affecting skin
- Patients and healthcare providers should approach AI with caution
- New AI model predicts sudden cardiac death risk better in cardiac sarcoidosis
- FSR invests $400K in 4 early-stage sarcoidosis research projects
- The questions of menopause mirror the uncertainty of sarcoidosis
- 7 new institutions join FSR alliance to improve treatment of sarcoidosis
- Simple blood test may predict cardiac sarcoidosis outcomes
- To scoot or not to scoot: Using a mobility aid with a dynamic disability
- Mobile app for breathing meditation may reduce sarcoidosis fatigue