My last doctor’s appointment of 2021 was on Dec. 30 and involved a six-minute walk test and a follow-up with my pulmonologist. The walk test didn’t seem to go well, as I required more supplemental oxygen than I usually do while working out at the gym. I explained this to…
Columns
We’re all familiar with the evolutionary fight-or-flight response. When faced with stress or danger, we go through physiological changes that enable us to either battle a predator (fight) or escape the situation (flight). However, there is another option, although we probably wouldn’t choose it willingly: to freeze. That’s…
“Of all the forms of inequality, injustice in healthcare is the most shocking and inhumane,” Martin Luther King Jr. said in 1966. I have COVID-19. As of this writing, I am one of 326 million people who have contracted this disease worldwide. As a pulmonary sarcoidosis fighter who…
Happy New Year! By now, we’ve all hopefully recovered from the holidays and are starting to get into the groove of 2022, hoping and planning for a better year. The recovery may be a little easier this year, as celebrations have looked different since COVID-19 took over the world. We’ve…
“Calvin, put that doughnut down!” someone said to me about nine years ago, poking my stomach like I was the Pillsbury Doughboy. It was a funny joke that made me laugh, but it was also true. Over time, I had gained quite a bit of weight and didn’t…
I go to the gym because I know it’s good for me to stay active and to get some physical exercise. Recently, I found out that it also helps me trust myself to take charge of my own well-being. I was fortunate to have participated in…
Today is my infusion day, and I’m excited and hopeful. I’ve been taking Inflectra (infliximab-dyyb) for about four months. Before that, I was on Remicade (infliximab), until my insurance company suddenly stopped approving it, compelling me to switch. The U.S. Food and Drug Administration considers the two to…
Like a coin, there are two sides to every story. A disagreement involves two different perspectives. A face has two cheeks. And sarcoidosis has two faces. I was reminded of this while helping an old friend and his son last week. My friend called me two weeks ago and…
I’ve been reading through my recent columns, and I noticed that I frequently mention how tremendously helpful therapy is. There are a few reasons for that. When I started my blog in 2010, my goal was to help people. I thought that sharing how I got through difficult times…
This month marks two and a half years that I’ve lived in New York City after moving here from Maryland. Although we’ve been living amid the COVID-19 pandemic for much of that time, I can certainly see why there are so many songs about this city. It is a…
Recent Posts
- Autoimmune diseases tied to higher sarcoidosis risk, new study finds
- Atyr to discuss efzofitimod’s future with FDA after Phase 3 sarcoidosis trial
- How do you celebrate Autoimmune Awareness Month?
- New congressional caucus to advocate for sarcoidosis research, funding
- Free virtual conference aims to empower sarcoidosis community
- The best advice I ever got for dealing with a rare disease
- Sarcoidosis and ILD burden rising globally, new analysis finds
- At high dose, brepocitinib eases symptoms of sarcoidosis affecting skin
- Patients and healthcare providers should approach AI with caution
- New AI model predicts sudden cardiac death risk better in cardiac sarcoidosis