Life Altered — Kate Spencer

The past few days have been “blah” for me. I try to remain optimistic despite my sarcoidosis, but sometimes the stuff of life just creeps in. Once things like worry, self-doubt, and skepticism take over, it’s often difficult to see past them. Whenever I find myself feeling this way,…

To be clear, no one ever made the claim that vitamins and supplements would cure me of sarcoidosis. However, they might boost my immune system, and that might help me to better manage the symptoms. From my own research and conversations with physicians, I learned that we should…

“What’s your worst symptom?” is a question I’m often asked while discussing sarcoidosis. My response is always the same: “Whatever symptom I have at the moment.” It’s true: Whatever I’m dealing with at the moment is the worst symptom. By the time that particular aspect of my condition has…

Sarcoidosis changes everything in life, including relationships. Since being diagnosed, I find that people in my life fall into several categories. First are those who know about my condition and have a healthy, satisfying relationship with me despite it. They include a precious few who occupy a special space…

I had not heard of an infrared sauna before a practitioner told me about the device. Early in the process of diagnosing my sarcoidosis, it was suggested as a way to help manage joint pain. Luckily, my primary care physician (PCP) has an infrared sauna in his office. For…

It was what I least felt like doing that Saturday morning: learning something new and being among a group of people. But the friend who urged me to attend a mixed media collage art class at the local library must have sensed it was exactly what I needed. Since…

Before sarcoidosis hit me, I was a Pilates enthusiast and practiced yoga, too. Between classes and my practice at home, I stayed rather active with these two forms of exercise. However, like so much in life, the ability to stay active drastically changed after my diagnosis. But then an…

I have an extreme aversion to needles. When I was much younger and needed to have blood drawn, I would pass out during the process. This happened every time, without fail, regardless of how we tried to prevent it. When my primary care physician, who is also a pulmonologist in…

After my diagnosis, I started looking for ways to help myself heal. Through research and conversations with healthcare providers, I learned that individuals with sarcoidosis have higher levels of inflammation than most of the population. Inflammation is the body’s natural response to infection or injury. It’s necessary for the…

Finding an exercise routine to stick with can be challenging under the best of circumstances. Since my sarcoidosis diagnosis, it has become even more of a dilemma. Research shows exercise can help with an overall sense of well-being and quality of life in those with sarcoidosis. But how…

Here in the northeastern part of the United States, we enjoy four distinct seasons. Before my sarcoidosis diagnosis, I appreciated each season for different reasons. However, since sarcoidosis, things have changed. Summer was my favorite season when I was younger. Like many kids, I spent days in the sun,…

“At least you look good.” I often hear this statement, or something close to it. I am confident the words are sincere and said with the best of intentions. Someone who tells me I look good, despite the fact that I have sarcoidosis, is hoping to make me feel…