Take a minute to think about what’s really important in your life. I find myself doing that more often than I used to. I often think about the things that mean the most to me like family, health, physical abilities, and friendships, but…

I’m grateful. On Rare Disease Day, and since, I’m grateful. On this day of consequence and nonsense, of war and peace, of movement and stagnation, of highest courts and lowest valleys, of pandemic and hope, I’m grateful. I’m even grateful for sarcoidosis, or at least my version of…

Sarcoidosis can present several distinct clinical manifestations, and some of these can mimic other diseases. Therefore, it is essential for clinicians to have as much complete and detailed information as possible to allow for an accurate diagnosis. Skin manifestations can be the first symptom of sarcoidosis. But sarcoidosis and chronic cutaneous lupus…

A case study of a woman, with both breast cancer and sarcoidosis in her breast lymph nodes, highlights the difficulties in distinguishing between these two conditions. The report, “Sarcoidosis imitating breast cancer metastasis: a case report and literature review,” published in the journal Cancer Biology & Medicine, also again calls attention to an apparent…

A large U.S. study found that bone sarcoidosis is more prevalent in white women and is linked to a number of affected organs. According to the authors, these findings can improve the knowledge of bone involvement in sarcoidosis and the methods of detection, as well as help define treatment strategies. The…

I recently read that social media basically captures our best fake day. I found that comment extremely funny, then quite sad. If I were to clean up that comment, I’d say something like, “Social media sometimes captures our best fake day, if we let it.” Because for me, and most…

A new study examined the case of a 30-year-old man who developed sarcoidosis in the lungs after treatment with infliximab (sold as Remicade, Inflectra) for his Crohn’s disease, a chronic condition affecting the gastrointestinal tract. The case study, titled “Pulmonary Sarcoidosis That Developed During the Treatment of a Patient…

The prevalence of sarcoidosis may be associated with the presence of high levels of certain chemical elements in the environment, a new study suggests. More studies are warranted to confirm the possible link to pollution. The study was published in the journal PLoS One in an article titled “Sarcoidosis in an…

“Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure.” — Marianne Williamson, “A Return to Love” Over the past few days, the negative impact of sarcoidosis has affected my emotions. It’s not uncommon for folks with this illness to…

One of the most stressful aspects of rare disease life is visiting a new doctor. You’d think we’d be used to it — after all, we do it often enough. But between the sheer volume of information we have to share and the limited time we have to share…