Sarcoidosis is a disease in which tiny clumps of inflammatory cells known as granulomas form in different tissues in the body. The lungs, lymph nodes, skin, and eyes are the organs most commonly affected. When sarcoidosis affects the lungs, it leads to symptoms such as…
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Sarcoidosis is a rare inflammatory disease that may affect any part of the body. The condition is associated with clumps of immune cells, called granulomas, forming in the organs, disrupting their normal function and potentially causing permanent damage. The most commonly affected organ is the lungs, with…
The Foundation for Sarcoidosis Research is calling for everyone to participate this month of April in a campaign to celebrate those living with sarcoidosis. This year’s campaign, #SarcoidStories, is an effort to raise awareness among the general public about the daily challenges and joys in the lives of…
In his 10 months on the job, Commissioner Scott Gottlieb of the U.S. Food and Drug Administration is earning praise for his efforts to make clinical trials for new therapies more flexible and responsive to the needs of rare disease patients. From cystic fibrosis to epidermolysis bullosa, the FDA…
David Curtis Glebe, a retired 64-year-old public prosecutor now living in Millsboro, Delaware, knows he’s lucky to be alive. In mid-2013, while in Arizona, Glebe was diagnosed with pancreatic neuroendocrine cancer (PNET) — the same disease that killed Apple’s founder and CEO Steve Jobs. After three years of progress…
Respiratory disease expert Jesse Román, MD, is the new CEO of Philadelphia’s Jane and Leonard Korman Respiratory Institute. Románhas published about 115 peer-reviewed articles in scientific journals and 20 manuscripts — primarily on sarcoidosis, interstitial lung disease and pulmonary fibrosis. Román’s most recent position was chairman of the Department of…
Patients with sarcoidosis who are exposed to glucocorticoids have an increased risk of developing osteoporosis and experiencing bone fractures, according to the results of a new study. However, people without sarcoidosis who receive glucocorticoid treatment have a similar risk, suggesting it is not the disease itself that increases this risk,…
Treatment with repository corticotropin (RCI), such as Acthar Gel, may protect the lungs from prednisone-induced damage and improve the outcome in patients with symptomatic pulmonary sarcoidosis, according to results of a clinical trial (NCT02188017). The findings, “Repository Corticotropin For Chronic Pulmonary Sarcoidosis.” were published in the journal Lung.
Loyola Medicine has just performed its 900th transplant, reaching a new milestone in its lung transplant program for patients with conditions affecting the lungs like sarcoidosis. Loyola has outperformed all other transplant centers in Illinois, with three times as many transplants as all the remaining centers combined. In 1988 the…
Intravenous immune globulin (IVIG) therapy, alone or combined with infliximab, may significantly ease symptoms of sarcoidosis-associated small fiber neuropathy (SSFN), according to a retrospective analysis study. The report, “Sarcoidosis-associated small fiber neuropathy in a large cohort: Clinical aspects and response to IVIG and anti-TNF alpha treatment” was published…