For the past few days, I’ve been trying to figure out when I started to feel incomplete. I don’t mean that I feel useless, but at what point did I start feeling inadequate to accomplish anything? It may sound a bit sketchy, but there is a relationship between sarcoidosis…
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Recently, I read a social media post about how tough every day can be while living with sarcoidosis. Out of respect for the author’s privacy, I won’t quote them, but the general idea was that they do certain things to appear “normal.” Oftentimes, that includes telling friends and family…
Children living in the same household with adults who work in mineral dust-releasing jobs may have an increased risk of developing sarcoidosis, according to a small study. The findings suggest that indirect exposure to potentially harmful minerals — and specifically, inhaled mineral particles — through co-habitation with adults working…
I’ve joked before that “middle-aged date night” entails my husband and me scheduling our annual physicals together. First the doctor’s office, then the lab, then maybe a stop for lunch before we head home for a nap. Things change for everyone as they get older, but it feels like I’ve…
Part of the reason I named this column “Run Your Own Race” is that I found (much to my great surprise) that running can easily be a metaphor for life. And when you have compromised lungs from sarcoidosis, running is also a fight for your life. In a…
African Americans with advanced-stage pulmonary sarcoidosis who are taking Acthar Gel (repository corticotropin injection) may see their symptoms ease and be able to reduce the use of other medications, according to new findings. The findings were pulled from a new subgroup analysis of a real-world study that…
aTyr Pharma is launching a Phase 3 clinical trial to evaluate the safety and effectiveness of efzofitimod (ATYR1923) in people with pulmonary sarcoidosis. Expected to begin later this year, the primary goal of the study — dubbed EFZO-FIT — will be a reduction in therapeutic corticosteroids, which…
A rare occurrence of sarcoidosis in male breast tissue was observed in an American man, according to a recent case report. The report, “A Rare Case of Sarcoidosis Involving Male Breast Tissue,” was published in the Cureus Journal of Medical Science. Sarcoidosis is characterized by…
I recently recorded my first episode as co-host of a podcast about arthritis — defining it, differentiating the various types, and discussing how it affects us. Our group of co-hosts included people living with rheumatoid arthritis (RA), Sjögren’s syndrome, non-radiographic axial spondyloarthritis, and sarcoidosis. I think we raised more…
It feels like something is missing for me this month. For the past two years, really. Before 2020, my Aprils were full of events, get-togethers, support, and connection with my sarcoidosis family. Now, we’re all in our own homes, saying again how much we miss each other as we get…