Life interrupted! The other night I fell out of bed. I’d been dreaming I was having drinks with my brother, and while we were talking, someone stepped over the bar and started to walk on me. My immediate reaction was to kick this person, which I did. I kicked so…
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I recently read that social media basically captures our best fake day. I found that comment extremely funny, then quite sad. If I were to clean up that comment, I’d say something like, “Social media sometimes captures our best fake day, if we let it.” Because for me, and most…
The Foundation for Sarcoidosis Research (FSR) has launched the FSR Global Sarcoidosis Clinic Alliance, a hub of clinics and hospitals around the world to advance care and research in sarcoidosis. Through engagement and education of both patients and clinicians, the initiative seeks to improve the lives of people with…
My birthday was three days ago, which was three days after the first day of summer. Growing up, the last day of school often fell on my birthday. My final report card determined if my day would be happy or crappy. As I got older, my birthday became a time…
When the 2022 NFL schedule was released last month, I noticed an Aug. 27 preseason game between the Washington Commanders and the Baltimore Ravens. While I live in New York (and have adopted a few teams to cheer for), those are the teams from the areas where I grew up.
Last updated June 20, 2022, by Lindsey Shapiro, PhD ✅ Fact-checked by José Lopes, PhD What is efzofitimod for sarcoidosis? Efzofitimod (formerly known as ATYR1923) is a first-in-class immunomodulatory therapy, designed to resolve inflammation and prevent subsequent scarring (fibrosis), that’s being investigated for people with…
For the past few days, I’ve been trying to figure out when I started to feel incomplete. I don’t mean that I feel useless, but at what point did I start feeling inadequate to accomplish anything? It may sound a bit sketchy, but there is a relationship between sarcoidosis…
Recently, I read a social media post about how tough every day can be while living with sarcoidosis. Out of respect for the author’s privacy, I won’t quote them, but the general idea was that they do certain things to appear “normal.” Oftentimes, that includes telling friends and family…
Children living in the same household with adults who work in mineral dust-releasing jobs may have an increased risk of developing sarcoidosis, according to a small study. The findings suggest that indirect exposure to potentially harmful minerals — and specifically, inhaled mineral particles — through co-habitation with adults working…
I’ve joked before that “middle-aged date night” entails my husband and me scheduling our annual physicals together. First the doctor’s office, then the lab, then maybe a stop for lunch before we head home for a nap. Things change for everyone as they get older, but it feels like I’ve…