I spent the first hours of April poring through television news in the U.S. Not a single mention of Sarcoidosis Awareness Month for my efforts. I did see a bus advertising it roll by in the background of a live broadcast in Philadelphia. I smiled because that’s life with a…

I once heard an old man say that “a changed mind is a dangerous thing.” In the summer of 2017, I spent two months in the hospital due to spontaneous pneumothorax. My lungs are in pretty bad shape because…

Sarcoidosis, and the medications prescribed to patients with the disease, do not lead to worse outcomes from COVID-19 infection, according to preliminary results of a survey conducted by the Foundation for Sarcoidosis Research (FSR). Though more participants are needed to confirm the results, the data are noteworthy…

I’ve been managing all right while being holed up alone since mid-March. But when I see my family and can’t hug them, I break inside. My mom worries, so twice a month I drive over and wait outside. From 6 feet or more, she mothers, telling me I should have…

An enzyme called chitotriosidase appears to be a reliable biomarker of sarcoidosis, a study suggests. The activity of this enzyme is correlated with sarcoidosis disease activity, severity, dissemination throughout the body, and may reflect the number of active granulomas within a given patient.

The American Thoracic Society has published its first official guidelines for how best to detect and diagnosis sarcoidosis in clinical practice. The guidelines were published in the American Journal of Respiratory and Critical Care Medicine, in an article titled “Diagnosis and Detection of Sarcoidosis. An Official American…

This has been one of my most difficult weeks in many years! For four weeks I’ve self-quarantined due to the COVID-19 pandemic. Like many others, my family and I continue adjusting while evaluating everything important to our lives. Everything seemed to…

The National Heart, Lung, and Blood Institute,  part of the National Institutes of Health (NIH), has given a $1.98 million grant to Wayne State University researchers to refine an antibody-based technology that can help to distinguish people with  sarcoidosis from tuberculosis patients and healthy individuals. Sarcoidosis is an…

Sensory overload! I’ve already completed my 15 days of self-quarantine and I’m ready to get out. Actually, I have been out a few times just to the grocery store and then back home. My family has been quarantined with me, with the exception…

The Foundation for Sarcoidosis Research is partnering with the American Lung Association for its sixth annual effort to raise awareness about sarcoidosis and provide resources for patients, caregivers, and clinicians during Sarcoidosis Awareness Month in April, and specifically to address concerns in the midst of the…