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I had not heard of an infrared sauna before a practitioner told me about the device. Early in the process of diagnosing my sarcoidosis, it was suggested as a way to help manage joint pain. Luckily, my primary care physician (PCP) has an infrared sauna in his office. For…

An educational conference for people with sarcoidosis and those close to them will be held at the University of Cincinnati this Saturday, featuring doctors with expertise in this disease, presentations, and a question-and-answer session. The Aug. 24 event at the Ohio university’s Kresge Auditorium runs from 10:00 a.m. to…

In all things, give thanks. I heard this saying regularly while growing up. My mother told my brother and me that we should be thankful for every life experience. I’m not sure if we were supposed to be grateful for overcoming our obstacles or expected to…

Using Jakafi (ruxolitinib) to treat a woman with polycythemia vera (PV; a blood cancer) led to complete resolution of her cutaneous sarcoidosis, and to mild reduction of her lung nodules, according to a case report. The findings suggest a new therapeutic strategy, especially for patients with cutaneous sarcoidosis,…

I have an extreme aversion to needles. When I was much younger and needed to have blood drawn, I would pass out during the process. This happened every time, without fail, regardless of how we tried to prevent it. When my primary care physician, who is also a pulmonologist in…

According to a new study comparing older and younger sarcoidosis patients, elderly people with sarcoidosis tend to have more severe disease and worse clinical outcomes. The study, “Elderly sarcoidosis: A comparative study from a 42-year single-centre experience,” was published in the journal Respiratory Medicine.  Sarcoidosis usually presents…

Over the last two weeks, I’ve been doing a lot of introspection. I’ve been thinking about how I came to be in this situation — living with sarcoidosis — and how I’m not going to let this illness define the rest of my life.

Finding an exercise routine to stick with can be challenging under the best of circumstances. Since my sarcoidosis diagnosis, it has become even more of a dilemma. Research shows exercise can help with an overall sense of well-being and quality of life in those with sarcoidosis. But how…