Why is this survey being conducted? The purpose of this survey is to gather information from individuals with sarcoidosis so that Bionews Services and its partners can bring better understanding, advocacy, and provide our readers more relevant editorial content to the larger sarcoidosis community. What will I do? If you…
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White women with sarcoidosis and multiorgan involvement may be at a higher risk of hypothyroidism, or low thyroid gland activity, than other people with the overactive immune system disorder, according to a study of more than 3,800 patients in the U.S. In fact, hypothyroidism — which is significantly…
A protein called neurofilament light chain (NFL), which supports nerve fibers, is elevated in adults with neurosarcoidosis — and appears to increase with more extensive brain inflammation — a study demonstrated. These findings support the neurofilament protein as a biomarker for disease activity in neurosarcoidosis, a form of…
Intravenous immune globulin (IVIG) therapy, alone or combined with infliximab, may significantly ease symptoms of sarcoidosis-associated small fiber neuropathy (SSFN), according to a retrospective analysis study. The report, “Sarcoidosis-associated small fiber neuropathy in a large cohort: Clinical aspects and response to IVIG and anti-TNF alpha treatment” was published…
This week, my wife and I will be celebrating our 22nd wedding anniversary. As only a wife can document such an occasion, we’ve been together for 35 years total. Our son asked me how it feels. I told him I’ll let him know when the…
Sarcoidosis is a rare disease characterized by clumps of inflammatory immune cells, called granulomas, forming in different tissues and organs throughout the body. These can injure the tissue, causing permanent damage, and affect how the organs work. There is no cure for sarcoidosis, but the symptoms can be managed…
My daughter always reminds me that I’m just “Dad.” At 20 years old, she believes she knows the ways of the world. No matter what advice she asks for, she always does the opposite of what I suggest and wonders why things don’t work out…
My last doctor’s appointment of 2021 was on Dec. 30 and involved a six-minute walk test and a follow-up with my pulmonologist. The walk test didn’t seem to go well, as I required more supplemental oxygen than I usually do while working out at the gym. I explained this to…
“Discipline is the bridge between goals and accomplishments.” – Jim Rohn Last weekend was really good for me. I had a chance to relax a little and celebrate my aunt’s 90th birthday. Although she wasn’t the youngest, she’s the last of my great-grandparents’ 11 children.
“This is a true story based on a lie.” That’s how each episode of “Apple Cider Vinegar,” a Netflix series released earlier this year, begins. The show tells the story of Belle Gibson, an Australian wellness influencer, app developer, and cookbook author. Through sharing her story about her…