A few days ago, I saw a post on Bluesky that made me chuckle … and then it made me think. Originally posted by @ONeillJones on another platform and reshared by @chronicillness.bsky.social (known as Chronic Illness Humor), it posed a simple question: “Y’all think there are vampires that eat…
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Managing sarcoidosis involves balancing diet, exercise, and symptom assessment. While some patients find relief through anti-inflammatory or plant-based diets, others use exercise to manage chronic pain or participate in pulmonary rehabilitation to combat the energy-depleting effects of pulmonary sarcoidosis.
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Severe chronic pain is a part of life for many of us with sarcoidosis, even with the use of pain medications. I’ve come to cope with my round-the-clock pain by accepting it as part of my “new normal” with sarcoidosis. Instead of being hellbent on trying to find…
The last day of pulmonary rehab is upon me. Truth be told, it’s bittersweet. This will be my third time in the rehab program. A few years ago, my pulmonary nurse practitioner suggested it might be a good program for me. She explained…
Life interrupted! The other night I fell out of bed. I’d been dreaming I was having drinks with my brother, and while we were talking, someone stepped over the bar and started to walk on me. My immediate reaction was to kick this person, which I did. I kicked so…
I am so tired of the overly used phrases “the new normal” and “we’re all in this together.“ No! These are not the truths we live with. Only other folks in the sarcoidosis…
Let’s be honest … Ok, I’ll be honest. I’ve found that being honest with myself seems to do me a world of good. And I don’t mind being honest with others about my health, but I often find their interest in my honesty is superficial. I…
“Life is like riding a bicycle. To keep your balance, you must keep moving.” — Albert Einstein I was diagnosed with pulmonary sarcoidosis a year after my mother passed away. That was over 20 years ago. Afterward, I didn’t give a lot of critical thought to living…
At this time last year, I was in the hospital. I spent three days there, including during my son’s birthday. During that time, my primary pulmonologist broke the news to me that I didn’t qualify for a procedure I was looking to have at this…
When living with a chronic health condition, challenges often seem to appear out of nowhere. After I was diagnosed with pulmonary sarcoidosis, I continued to do anything and everything I wanted to do. I rarely considered how my health might dictate my actions and abilities. Call it…
Finding an exercise routine to stick with can be challenging under the best of circumstances. Since my sarcoidosis diagnosis, it has become even more of a dilemma. Research shows exercise can help with an overall sense of well-being and quality of life in those with sarcoidosis. But how…