Skip to content
Sarcoidosis News logo
  • About sarcoidosis
    What is sarcoidosis?
    Types
    Causes
    Symptoms
    Diagnosis
    Living with sarcoidosis
    • Pregnancy
    • Children
  • Treatments
    Approved treatments
    Experimental treatments
    • Arava
    • CellCept
    Non-drug treatments
    • Surgery
    • Oxygen therapy
  • News
  • Columns
    Float Like a Buttahfly — Kerry Wong
    Archived columns
    • Invisible Chaos — Athena Merritt
    • Life Altered — Kate Spencer
    • Run Your Own Race — Calvin Harris
    In memoriam
    • No Tears for Sarcoidosis — Charlton Harris
  • Clinical trials
    What are clinical trials?
    Types of clinical trials
    How do clinical trials work?
    Traditional vs. remote vs. hybrid clinical trials
    FAQs about clinical trials
  • What can we help you find today?

August 25, 2020 News by Forest Ray PhD

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search for new medicines for rare disorders and incorporating more patient input into research. The goal is to help the pharmaceutical industry deliver innovative new therapies faster and smarter, the…

Recent Posts

  • Prevalence, incidence of sarcoidosis in Norway rose over 30 years
  • April officially recognized as Sarcoidosis Awareness Month in US
  • Study identifies 28 gene mutations linked with sarcoidosis risk
  • Study backs efzofitimod as potential pulmonary sarcoidosis treatment
  • In sickness and in health: Living and loving with sarcoidosis
  • Heart involvement seen for 1 in 10 pulmonary sarcoidosis patients
  • FSR helping provide free N95 masks during California wildfire cleanup
  • Living with sarcoidosis and its internal conflicts
  • FSR launches ‘Facing Sarcoidosis Together’ this awareness month
  • XTMAB-16 Phase 1/2 trial for pulmonary sarcoidosis advances


Envelope icon

Subscribe to our newsletter

Get regular updates to your inbox.

Bionews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: info@bionews.com
Phone: 1-800-936-1363

  • About Us
  • Leadership
  • Our Culture
  • Editorial Policy
  • Advertising Policy
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2013-2025 All rights reserved.