Virtual Vigil Planned as Part of Sarcoidosis Awareness Month

Virtual Vigil Planned as Part of Sarcoidosis Awareness Month
0
(0)

April is Sarcoidosis Awareness Month and the Foundation for Sarcoidosis Research (FSR) is holding a virtual Memorial Monday Candlelight Vigil on April 26 to honor those who have died from the rare disease.

The hour-long webinar starts at 5 p.m. CST and will feature a special tribute presentation and speakers. The candle lighting — a part of other awareness month events — will “shine a light on the memories and spirit of our loved ones who have passed,” an FSR press release states.

To have a loved one acknowledged at the event include their first name when registering. If they are to be included in the tribute presentation, submit their first name, a photo, and a special memory of them to [email protected]

This year the FSR has partnered with candle company Scents of Adventure, which made a custom, “Celebrate Life” soy wax candle for the event. The candle’s label, on which there are four people arm-in-arm symbolize kinships and the joy of life. Participants may purchase the handcrafted candle here. The company will donate a portion of its proceeds from candle sales to the nonprofit FSR.

“We invite you to join us by purchasing this candle to celebrate and honor those we love,” states the candle description on the company’s website. “Light this candle when you are seeking peace and wish to pay tribute to the lives that touched your heart.”

The FSR also has other ways to mark awareness month. In 2019, more than 87 buildings, landmarks, and businesses across the U.S. and Canada were bathed in purple — the color that represents sarcoidosis — on April 13, World Sarcoidosis Day, to raise awareness of sarcoidosis.

This year, supporters may download FSR social media tools and change their Facebook profile frame to spread the word about sarcoidosis. An informational toolkit for patients also is available.

The FSR works to advance sarcoidosis research and support the sarcoidosis patient community through education, advocacy, and awareness initiatives.

In the United States, there are fewer than 200,000 cases each year of sarcoidosis. The disease is marked by an overactive immune system that leads to the formation of small clumps of inflammatory cells in different tissues and organs, affecting how they work.

Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
Total Posts: 13
Inês holds a PhD in Biomedical Sciences from the University of Lisbon, Portugal, where she specialized in blood vessel biology, blood stem cells, and cancer. Before that, she studied Cell and Molecular Biology at Universidade Nova de Lisboa and worked as a research fellow at Faculdade de Ciências e Tecnologias and Instituto Gulbenkian de Ciência. Inês currently works as a Managing Science Editor, striving to deliver the latest scientific advances to patient communities in a clear and accurate manner.
×
Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
Latest Posts
  • Memorial Monday Candlelight Vigil

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?