A sarcoidosis patient and ardent supporter of the Foundation for Sarcoidosis Research (FSR) was dubbed a “warrior” by the nonprofit for competing in the Ironman 70.3 Chattanooga triathlon, in Tennessee, to raise awareness of the rare condition as well as funds to fight it. The competition, held…
Saying “sarcoidosis” can be problematic for some, so the Foundation for Sarcoidosis Research (FSR) will focus on the condition’s pronunciation as part of this year’s National Sarcoidosis Awareness Month, which is observed each April. Sarcoidosis is also difficult to diagnose, and therapies can only manage its symptoms.
To help boost awareness of sarcoidosis and support those affected by the complex and often misunderstood disorder, the Foundation for Sarcoidosis Research (FSR) is hosting its first in-person training of its Global Sarcoidosis Clinic Alliance (FSR-GSCA) volunteer patient leaders at the Cleveland Clinic. The training takes place…
The Foundation for Sarcoidosis Research (FSR) is offering ways to participate in National Sarcoidosis Awareness Month, observed each April, to call attention to sarcoidosis and the 175,000 U.S. residents thought to be living with the disease. Despite advances in research, sarcoidosis remains challenging to diagnose and…
Four sarcoidosis patients and researchers who work to better understand the disease and raise awareness about it will be honored at the Foundation for Sarcoidosis Research (FSR)’s Inaugural Sarcoidosis Crystal Awards Gala Celebrating Connections, Collaboration, and Catalyzing Research. The gala, which will take place May 24 from 6…
The Ann Theodore Foundation and the Milken Institute have awarded more than $3 million to six research teams nationwide to study sarcoidosis topics ranging from risk factors for the poorly understood disease to its underlying mechanisms. The Ann Theodore Foundation Breakthrough Sarcoidosis Initiative grant program seeks to understand…
Temple Lung Center at Temple Health in Philadelphia has become a founding member of the Foundation for Sarcoidosis Research (FSR) Global Sarcoidosis Clinic Alliance, a group of clinics and hospitals around the world that aims to improve the lives of sarcoidosis patients through care and research advancement. “Sarcoidosis is…
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person on June 26 for a day of learning and networking in Cleveland, Ohio. The event, which brings together the rare disease community, will take place at the InterContinental Cleveland Conference…
The Foundation for Sarcoidosis Research (FSR) has introduced a new online support group for those with chronic sarcoidosis. The peer-led group, created in response to patient feedback received last year, opens with a six-month schedule that began this month. Patients and caregivers can participate each month in one…
Two university professors have each been awarded $25,000 small research grants from the Foundation for Sarcoidosis Research (FSR) to pursue projects aimed at improving outcomes for people with sarcoidosis. Researcher Maneesh Bhargava, MD, PhD, of the University of Minnesota, will use the grant to focus on inflammation in…
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