The Struggle to Feel Seen and Heard With Sarcoidosis
Can you hear me? Do you see me? I repeat these two phrases at least 10 times a day. I think it’s common for folks living with chronic health issues to ask people these questions. I don’t know…
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Can you hear me? Do you see me? I repeat these two phrases at least 10 times a day. I think it’s common for folks living with chronic health issues to ask people these questions. I don’t know…
“Grace means that all of your mistakes now serve a purpose, instead of serving shame.” – Mike Rusch For the past few days, I’ve felt like I’m missing something — or maybe that I’m missing out on something. I keep telling myself that I have…
At this time last year, I was in the hospital. I spent three days there, including during my son’s birthday. During that time, my primary pulmonologist broke the news to me that I didn’t qualify for a procedure I was looking to have at this…
“I can be changed by what happens to me. But I refuse to be reduced by it.” — Maya Angelou Last year, my primary pulmonologist and I decided to get a second opinion about my pulmonary sarcoidosis, as well…
Dear family, friends, and caregivers, First, I want to thank you for being people I can count on to help me through my health issues, and I apologize for putting you in this situation. Dealing with a chronic condition has taken a lot out of me,…
“Beareth all things, believeth all things, hopeth all things, endureth all things.” – 1 Corinthians 13:7 I have lived by this Bible verse for a long time. I really embraced it when I was in high school. For the most part, I was a…
Have you ever experienced a moment in which you just knew you were right about something, but you let the voice inside you convince you otherwise? That has happened to me several times in the past, but not this time. A few years ago, I was…
I lost my mother two weeks after I had surgery to remove nasal polyps. She had been my point of contact with the doctors during the surgery. I was still dealing with her loss when I was diagnosed with pulmonary…
I don’t know about you, but I’m exhausted! This has been a year for the books. We have all been through a lot, and now the year is coming to an end. I’m welcoming the new year with open arms. To use a golf analogy, we’re…
Second opinions are a welcome hope! I received one for the first time this week, and the experience left me questioning my decision. Earlier this year, my primary pulmonologist and I agreed that I should seek a second opinion on my lung health.
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