For the past few months, I’ve been having a lot of pain around my ribs. I may have dislocated a…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
As I type this, I have 13 tabs open in my browser. I’ve been working on advocacy campaigns for the…
“Optimist: Someone who figures that taking a step backward after taking a step forward is not a disaster, it’s a…
We’re all familiar with the evolutionary fight-or-flight response. When faced with stress or danger, we go through physiological changes…
Happy New Year! By now, we’ve all hopefully recovered from the holidays and are starting to get into the groove…
I’ve been reading through my recent columns, and I noticed that I frequently mention how tremendously helpful therapy is. There…
I’ve never been very good with boundaries. I’ll respect yours, sure. But when it comes to setting my own and…
Thanksgiving has always been one of my favorite holidays. It’s not about material things, or one religion over…
Yesterday, I made vegetable curry for dinner, and it was a big deal. Well, it was for me. I’ve never…
The sarcoidosis community took a serious hit when we learned of fellow warrior Rodney Reese’s passing on Sept. 25. A…