Whether I’m resting after a long day at the infusion center or busy working on my next big…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
“’Hang on a sec, hon,’ I called to my husband in the car, at the airport, and again on the…
Bracelets with messages meant just to cheer me, Wireless earbuds when anyone’s near me, Cute comfy PJs without…
Ten years ago this month, I was devastated to leave a job I loved — one I thought would be…
I was 7 years old when I saw “Poltergeist,” the 1982 film about a family that moves into…
Have you ever had one of those days? You know, the kind where nothing seems to go right, where a…
When I learned that an upcoming episode of the “AiArthritis Voices 360 Talk Show” would focus on the difficulty…
How do I know that my hip is getting better? My back is hurting more. I know that sounds like…
“Be who you are and say what you feel, because those who mind don’t matter, and those who matter don’t…
“Baseball is 90% mental. The other half is physical.” — New York Yankees Hall of Famer Yogi Berra It seems…