“I’m broke, but I’m happy I’m poor, but I’m kind I’m short, but I’m healthy, yeah!” —…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
Before I was diagnosed with sarcoidosis, I’d never heard of this disease. No one I knew had heard of…
People sometimes say their cars are an extension of their personality: sporty, sexy, rugged, classy, adventurous — any of the…
I’ve joked before that “middle-aged date night” entails my husband and me scheduling our annual physicals together. First the doctor’s…
Earlier today, I scheduled appointments for my husband and me to see our primary doctor and pulmonologist. I also rescheduled…
I recently recorded my first episode as co-host of a podcast about arthritis — defining it, differentiating the various…
There seems to be a correlation between productivity and inherent value nowadays. The busier a person is at work, the…
It feels like something is missing for me this month. For the past two years, really. Before 2020, my Aprils…
For the past few months, I’ve been having a lot of pain around my ribs. I may have dislocated a…
As I type this, I have 13 tabs open in my browser. I’ve been working on advocacy campaigns for the…