To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
Articles by Mary Chapman
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
People living with or affected by sarcoidosis are invited to apply for membership in the new patient advisory committee…
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
During April, National Sarcoidosis Awareness Month, the Society for Cardiovascular Magnetic Resonance (SCMR) is promoting the use of cardiac…