Columns

Spreadsheets and sarcoidosis: Strategies to survive and thrive

Last week, I attended a friend’s fundraiser with my husband, our moms, and my sister. Throughout the evening, we talked about the latest shows we’d been watching, noting which series were absolutely must-see. My sister and I continued the conversation through the weekend, texting each other so many recommendations that…

Honoring this year’s Rare Disease Day any way we can

Note: This column discusses an upcoming FDA-NIH Rare Disease Day event, which planned to bring together members of the rare disease community with healthcare providers, researchers, lawmakers, and more at the NIH main campus in Bethesda, Maryland. That event has since been postponed. Stay tuned for further announcements. There’s a…