Columns

Today is my infusion day, and I’m excited and hopeful. I’ve been taking Inflectra (infliximab-dyyb) for about four months. Before that, I was on Remicade (infliximab), until my insurance company suddenly stopped approving it, compelling me to switch. The U.S. Food and Drug Administration considers the two to…

Like a coin, there are two sides to every story. A disagreement involves two different perspectives. A face has two cheeks. And sarcoidosis has two faces. I was reminded of this while helping an old friend and his son last week. My friend called me two weeks ago and…

I’ve been reading through my recent columns, and I noticed that I frequently mention how tremendously helpful therapy is. There are a few reasons for that. When I started my blog in 2010, my goal was to help people. I thought that sharing how I got through difficult times…

This month marks two and a half years that I’ve lived in New York City after moving here from Maryland. Although we’ve been living amid the COVID-19 pandemic for much of that time, I can certainly see why there are so many songs about this city. It is a…

“I am thankful to all those who said no. It’s because of them, I did it myself.” — Wayne W. Dyer Now that we’re approaching the thick of the holiday season, it’s time for us sarcoidosis warriors to be thankful for what we have and what…

I’ve never been very good with boundaries. I’ll respect yours, sure. But when it comes to setting my own and sticking to them, not so much. Over the years, this has taken its toll on relationships, employment, and even my health. Kerry at Disney World with her mobility…

Recently, my former brother-in-law Johnny invited me to his house for the weekend to spend some much-needed time with friends. He lives about 40 miles outside of Philadelphia, and I love visiting him because his home sits on a hill on a quiet cul-de-sac. I expected it to be a…

Thanksgiving has always been one of my favorite holidays. It’s not about material things, or one religion over another, or one-upping anyone with decorations or extravagant gifts. It’s simply a day of gratitude. A day for friends, family, football, and of course,…

As I write this, today is my best friend’s birthday. If I know him well, I suspect that on this day (I’m writing this on Tuesday), he is both externally happy and internally reflective. I suppose it is natural to take stock of life — both the good and the…

Yesterday, I made vegetable curry for dinner, and it was a big deal. Well, it was for me. I’ve never been much of a cook. When I was 15, I “wooed” my husband by burning a frozen pizza, so he knew what he was getting into when he chose to…