“Not everything that is faced can be changed, but nothing can be changed until it is faced.” — James A. Baldwin Recently, I was asked an unusual and interesting question: “Do you know anyone personally that has sarcoidosis?” After a few seconds of thinking about an answer, I had…
Columns
“The secret of change is to focus all of your energy not on fighting the old, but on building the new.” — Dan Millman Now that some of the pandemic-era restrictions are being lifted throughout the U.S., I can’t help but feeling like I missed a good deal of…
As a teen, I got a T-shirt from my best friend that said “Me, paranoid? Who wants to know?” So, you see, trusting maskless strangers to be fully vaccinated just isn’t in my nature. We are still in a pandemic. With sarcoidosis, two shots in the arm doesn’t mean we…
Mother’s Day was a couple weeks ago here in the U.S., but I must admit, I’m not a big fan of the holiday. Let me explain. On Mother’s Day weekend in 2003, I suddenly lost my mother. I had just returned to work after having an…
My memory is terrible. But I can vividly recall hovering over a rib-eye steak in a restaurant last February telling a lie. It only took a forkful for it to slide out. And a few more bites to convince myself it would forever be true. I said I would never…
Seeing actor Will Smith post that he was in the worst shape of his life made me smile. Because grinning in short shorts with his paunch on display, he shamelessly owned something I’ve often felt. Getting and staying fit is tough. Sarcoidosis and other chronic illnesses don’t…
“Discipline is the bridge between goals and accomplishments.” – Jim Rohn Last weekend was really good for me. I had a chance to relax a little and celebrate my aunt’s 90th birthday. Although she wasn’t the youngest, she’s the last of my great-grandparents’ 11 children.
I miss the days when a sneeze was nothing to worry about. Especially after I encountered a stranger who was not wearing a mask and spraying the air. I veered to get out of his path, and he moved — intent, it seemed, to stay in mine. I walked faster,…
With views of trees from every window, pollution never crossed my mind when I signed my current lease. Which is how I ended up in an area with unhealthy air. If you live in the U.S., there’s a good chance you’re in one, too. The American Lung Association released its…
“If you’re not nervous, you’re not paying attention.” – Miles Davis Over the past few months, I’ve been documenting my visits to a new hospital, where I’m receiving a second opinion regarding my pulmonary sarcoidosis. Any treatments or therapies this team can offer would be welcome,…
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- New congressional caucus to advocate for sarcoidosis research, funding
- Free virtual conference aims to empower sarcoidosis community
- The best advice I ever got for dealing with a rare disease