“Grace means that all of your mistakes now serve a purpose, instead of serving shame.” – Mike Rusch For the past few days, I’ve felt like I’m missing something — or maybe that I’m missing out on something. I keep telling myself that I have…
Columns
Envy is a terrible thing. But three months into the year, I can no longer shake it. I thought I’d be an early candidate for protection against COVID-19 because of my sarcoidosis and asthma. But I’ll be among the last eligible in Pennsylvania, which as of this writing…
At this time last year, I was in the hospital. I spent three days there, including during my son’s birthday. During that time, my primary pulmonologist broke the news to me that I didn’t qualify for a procedure I was looking to have at this…
I view my biological clock as a stubborn, old mule. She dictates her pace, and getting her to change is hard. Real hard. She wants no part of the foolishness known as daylight saving time (DST). But the U.S. is among fewer than 40% of countries worldwide that…
We sat just a few feet apart, trying to figure each other out. He jotted down his clues, and watching him closely, I looked for mine. Given that fewer than 200,000 Americans have sarcoidosis, which qualifies it as a rare disease in the U.S., it wasn’t a mystery he often…
I know playing “what if” is a useless exercise when it comes to sarcoidosis. But during a four-day stint without cellphone coverage or internet access, I found myself doing it anyway. This disease has many scary aspects, such as cardiac involvement, which I wrote about earlier this month. And…
Many call it “heart attack snow.” It’s heavy. It’s backbreaking. Last week, we went head-to-head. In “Terminator” terms, the snow was the advanced T-3000 cyborg. I was “Pops,” the old T-800 out to prove I wasn’t obsolete. I’m used to sarcoidosis putting me through the wringer emotionally. But fluffy…
My physician’s index finger slid across the X-ray, briefly stopping in areas to indicate the foreign presence in my lungs. I had pulmonary sarcoidosis. And for the next 14 years, I would have regular examinations for my pulmonary health without ever knowing that my heart could be at risk,…
“I can be changed by what happens to me. But I refuse to be reduced by it.” — Maya Angelou Last year, my primary pulmonologist and I decided to get a second opinion about my pulmonary sarcoidosis, as well…
Slowing down has always been hard for me. As a kid, I’d squirm out of my mom’s hugs telling her, “I gotta go play.” While racing along, details often escape me. Which is why I overlooked the initial signs of my sarcoidosis. The pandemic has changed my…
Recent Posts
- Study highlights challenges in diagnosing silica-linked diseases
- When chronic illness life feels overwhelming, seek joy and support
- Comparing protein levels in urine, blood may help diagnose renal sarcoidosis
- Kaleidoscope sparks new Sarcoidosis Awareness Month campaign
- Using our role as ‘professional patients’ to learn and pay it forward
- Most deaths in hospitalized sarcoidosis patients linked to other causes
- A night of nostalgia proves compassion counts with chronic illness
- 2 factors linked to higher risk of death for lung sarcoidosis patients in study
- Autoimmune diseases tied to higher sarcoidosis risk, new study finds
- Atyr to discuss efzofitimod’s future with FDA after Phase 3 sarcoidosis trial