The World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) and the Foundation for Sarcoidosis Research (FSR) have recognized the University of Miami Sarcoidosis Program as a Sarcoidosis Center of Excellence. This recognition is granted to multidisciplinary teams of medical professionals, who share a specialized facility that…
News
Testicular sperm aspiration for in vitro fertilization (IVF) is a successful strategy to overcome infertility associated with methotrexate– and steroid-resistant testicular sarcoidosis, a case study shows. The report documents a case of a man who, within two years of a sarcoidosis diagnosis, showed complete azoospermia (absence…
A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be featured on the front cover of an upcoming calendar in the “Same But Different” contest to raise awareness about rare disorders. “A Lovely Day Out in Kew Gardens,”…
Relative to the general population, people with sarcoidosis are at higher long-term risk of heart failure and other heart problems, a large Danish data study suggests. Its researchers recommend regular monitoring of cardiac issues across this patient group. The study, “Long-Term Adverse Cardiac Outcomes in Patients With…
A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its use in future appointments, a series of surveys found. The surveys were conducted by the National Organization for Rare Disorders (NORD) and involved more than 800…
People with coexisting sarcoidosis and inflammatory bowel disease (IBD) have higher in-hospital rates of respiratory failure, but lower colon surgery rates and gut penetrating disease, than those with IBD alone, a large-scale patient record analysis found. …
Kidney involvement, heart wall abnormalities, and left heart failure were identified as risk factors for a relapse of cardiac sarcoidosis, a long-term study involving more than 150 patients suggests. Immunosuppressant treatment with cyclophosphamide was also linked to a significantly lower risk of cardiac relapse in this patient population.
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their favorite photographs in a calendar contest to heighten awareness of rare diseases, including amyotrophic lateral sclerosis (ALS). The organization’s panel of judges has pared the number of contest submissions…
Exposure to inhaled silica dust appears to increase the risk of sarcoidosis among men 20 to 65 years old, according to a recent study from Sweden. Men 35 and younger, and older men with more than six years of regular exposure to the dust saw the highest risk.
People with sarcoidosis are being asked to donate blood samples and information related to their disease to help the Oklahoma Medical Research Foundation (OMRF) further its work into how sarcoidosis develops and progresses. Healthy individuals, serving as a control group, are also asked to take part. Participants will be asked…
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