Global sarcoidosis network expands to 55 institutions worldwide
Alliance works to advance research and improve patient care
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The Foundation for Sarcoidosis Research (FSR) has added nine institutions to its Global Sarcoidosis Clinic Alliance, bringing the international network to 55 member clinics and hospitals working to advance sarcoidosis research and improve patient care.
The new members include eight institutions joining the alliance for the first time, including AdventHealth Orlando in Florida; Avicenne University Hospital in France; Brigham and Women’s Hospital in Boston; Columbia University Irving Medical Center in New York; Duke University in North Carolina; Montefiore Einstein in New York; UCI Health in California; and the University of Texas at Austin.
The ninth institution is the University of Virginia, a founding member that is rejoining the network as FSR expands research efforts and programs focused on rural health and outreach to military veterans
“We are thrilled to be rejoining the FSR Global Sarcoidosis Clinic Alliance and look forward to once again collaborating with this growing network to advance sarcoidosis research and deliver the highest quality care for our patients,” Catherine Bonham, MD, an assistant professor of pulmonary and critical care medicine and scientific director of the Interstitial Lung Disease Program of the University of Virginia, said in an FSR press release.
Alliance provides patient access to trials, services, and more
Launched in 2022, the alliance is designed to ensure that sarcoidosis patients in every community have access to relevant information, educational materials, clinical trials, and support services.
It is also designed to support clinicians who work with sarcoidosis patients, providing networking opportunities and forums where doctors can learn more about the disease and share important advances in research and disease management.
Members of the global network can access innovative clinical tools, exchange knowledge with specialists at other institutions, and share resources intended to support evidence-based approaches to treatment.
The alliance also supports the development of what FSR describes as the largest cross-institute longitudinal registry focused on multi-organ sarcoidosis. Collecting information over time in such a large registry could help researchers better understand the disease and inform future approaches to care.
Each institution that joins builds on uniting the world’s leading sarcoidosis experts to break down barriers, accelerate discoveries and edefine what is possible in sarcoidosis care and research.
Since the alliance launched, FSR has provided more than $4.5 million to member institutions through research grants, projects to improve clinical care, and advisory and membership support.
The addition of Avicenne University Hospital in France expands the alliance’s international presence and creates further opportunities for specialists to collaborate across national borders.
“We are delighted to join the Alliance and look forward to strengthening collaboration across borders to share expertise and improve sarcoidosis care worldwide,” said Florence Jeny, MD, PhD, and Hilario Nunes, MD, PhD, of Avicenne University Hospital
Two other institutions are joining through physicians who previously participated in the alliance at other workplaces. Debabrata Bandyopadhyay, MD, brought the program to AdventHealth Orlando, while Mehdi (Matt) Mirsaeidi, MD, helped extend its reach to the University of Texas.
“55 leading clinics. One global alliance. One shared mission. Each institution that joins builds on uniting the world’s leading sarcoidosis experts to break down barriers, accelerate discoveries and redefine what is possible in sarcoidosis care and research,” said Mary McGowan, FSR’s president and CEO.
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