Making memories and forging friendships at a rare disease forum
“People will forget what you said, people will forget what you did, but people will never forget how you made them feel.” While the origins of this quote are uncertain, it is often…
Float Like a Buttahfly
— Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. She recently published Kaleidoscope: Rare Disease Stories, a diverse collection of true stories told by nearly 50 rare disease warriors, and plans to expand this into a series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
Featured Post
Finding joy while living with sarcoidosis is imperative
Last week, my husband and I took a road trip to see the Yankees play the Reds in Cincinnati, checking another stadium off our bucket list. We went out for brunch before the game…
Read more
