How a hip replacement brought me happiness and hope
When I told my primary physician a few months ago that I was diagnosed with avascular necrosis (also known as AVN or osteonecrosis) and would be having a total hip replacement in early…
Float Like a Buttahfly
— Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. She recently published Kaleidoscope: Rare Disease Stories, a diverse collection of true stories told by nearly 50 rare disease warriors, and plans to expand this into a series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Boiling frog syndrome: Symptoms of sarcoidosis turn up the heat
“When did the pain start?” That’s a fairly straightforward question with an uncomplicated answer for most people: “I fell last Thursday and hurt my knee.” “I was helping a friend move over the weekend…
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