It seems there’s a commemorative day for just about everything. Today alone apparently is the Gold Cup Parade, National Chocolate Pecan Pie Day (I’m all for that), National Radio Day, and World Mosquito Day (no thanks). I recently learned that Aug. 30 is National Grief Awareness Day, which…
Float Like a Buttahfly
— Kerry Wong

Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. She recently published Kaleidoscope: Rare Disease Stories, a diverse collection of true stories told by nearly 50 rare disease warriors, and plans to expand this into a series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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