July 17, 2020July 15, 2020
Using a Healthy Diet to Treat Sarcoidosis
Columns, No Tears for Sarcoidosis - a Column by Charlton Harris
A few months ago I had a conversation with someone who told me he was recently released from the ... Read more
July 16, 2020July 16, 2020
Women With Sarcoidosis Have Higher Mortality Risk From Heart Problems, Study Suggests
News
Women with sarcoidosis are more likely to die in hospital from heart complications and also to experience sudden cardiac ... Read more
July 14, 2020July 10, 2020
Small Fiber Neuropathy Is Going Undiagnosed in Sarcoidosis
Columns, Invisible Chaos - a Column by Athena Merritt
With 92 degrees forecast, I headed out for a walk Thursday morning to beat the heat. Within minutes, I ... Read more
July 13, 2020July 13, 2020
National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US
News, syndicated
The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the ... Read more
July 10, 2020July 8, 2020
After Celebrating My Birthday, I’m Focused on Self-improvement
Columns, No Tears for Sarcoidosis - a Column by Charlton Harris
I accomplished a few things that I’m proud of this past week. I finally finished one of my online ... Read more
July 9, 2020July 9, 2020
Worse Physical Condition, Lung Function Predict Shorter Lives Without Transplant in SAPH Patients, Study Finds
News
People with sarcoidosis-associated pulmonary hypertension who have reduced physical fitness or worse gas exchange capacity live significantly shorter times ... Read more
July 7, 2020July 7, 2020
My New Vegetarian Diet Has Brought Sarcoidosis Pain Relief
Columns, Invisible Chaos - a Column by Athena Merritt
My Fourth of July celebrations always include barbecue, but not this year. I made the leap to a vegetarian ... Read more
July 2, 2020July 2, 2020
Foundation Seeking Members for New Patient Advisory Committee
News
People living with or affected by sarcoidosis are invited to apply for membership in the new patient advisory committee ... Read more
June 30, 2020June 26, 2020
Breathing Polluted Air Is the Deadly Norm for Many
Columns, Invisible Chaos - a Column by Athena Merritt
With stifling June heat and pollen cleared by rainfall, I opened my windows. Drivers finished their workdays and inched forward ... Read more
June 26, 2020June 24, 2020
This Father’s Day Reminded Me of a Valuable Lesson
Columns, No Tears for Sarcoidosis - a Column by Charlton Harris
Father’s Day was always a good time for my family when I was growing up. My brother and I ... Read more
June 25, 2020June 25, 2020
Severe Fatigue Very Common in Pulmonary Sarcoidosis Patients, Dutch Study Shows
News
Severe fatigue affects more than 60% of pulmonary sarcoidosis patients and is associated with worse shortness of breath, daytime ... Read more
June 23, 2020June 19, 2020
DIY Project Drills Home Important Sarcoidosis Lessons
Columns, Invisible Chaos - a Column by Athena Merritt
A pile of boards and bolts stood before me as the first inkling of doubt crept in. Gathering what ... Read more

July 17, 2020July 15, 2020

Using a Healthy Diet to Treat Sarcoidosis

Columns, No Tears for Sarcoidosis - a Column by Charlton Harris

A few months ago I had a conversation with someone who told me he was recently released from the hospital after having triple bypass surgery. I mentioned that my ... Read more

July 16, 2020July 16, 2020

Women With Sarcoidosis Have Higher Mortality Risk From Heart Problems, Study Suggests

News

Women with sarcoidosis are more likely to die in hospital from heart complications and also to experience sudden cardiac death than male patients, while men are more likely to ... Read more

July 14, 2020July 10, 2020

Small Fiber Neuropathy Is Going Undiagnosed in Sarcoidosis

Columns, Invisible Chaos - a Column by Athena Merritt

With 92 degrees forecast, I headed out for a walk Thursday morning to beat the heat. Within minutes, I had to quit because of a sarcoidosis-related condition that required ... Read more

July 13, 2020July 13, 2020

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

News, syndicated

The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, of living with rare disease ... Read more

July 10, 2020July 8, 2020

After Celebrating My Birthday, I’m Focused on Self-improvement

Columns, No Tears for Sarcoidosis - a Column by Charlton Harris

I accomplished a few things that I’m proud of this past week. I finally finished one of my online nutrition courses, and I finally got my ice cream cake. ... Read more

July 9, 2020July 9, 2020

Worse Physical Condition, Lung Function Predict Shorter Lives Without Transplant in SAPH Patients, Study Finds

News

People with sarcoidosis-associated pulmonary hypertension who have reduced physical fitness or worse gas exchange capacity live significantly shorter times without requiring a transplant, a new study indicates. The study, ... Read more

July 7, 2020July 7, 2020

My New Vegetarian Diet Has Brought Sarcoidosis Pain Relief

Columns, Invisible Chaos - a Column by Athena Merritt

My Fourth of July celebrations always include barbecue, but not this year. I made the leap to a vegetarian diet on May 23. I’m already seeing benefits from the ... Read more

July 2, 2020July 2, 2020

Foundation Seeking Members for New Patient Advisory Committee

News

People living with or affected by sarcoidosis are invited to apply for membership in the new patient advisory committee being established by the Foundation for Sarcoidosis Research, known as ... Read more

June 30, 2020June 26, 2020

Breathing Polluted Air Is the Deadly Norm for Many

Columns, Invisible Chaos - a Column by Athena Merritt

With stifling June heat and pollen cleared by rainfall, I opened my windows. Drivers finished their workdays and inched forward in traffic outside my home. Within minutes, gentle breezes carried ... Read more

June 26, 2020June 24, 2020

This Father’s Day Reminded Me of a Valuable Lesson

Columns, No Tears for Sarcoidosis - a Column by Charlton Harris

Father’s Day was always a good time for my family when I was growing up. My brother and I were raised by a single mother, but my maternal grandfather ... Read more

June 25, 2020June 25, 2020

Severe Fatigue Very Common in Pulmonary Sarcoidosis Patients, Dutch Study Shows

News

Severe fatigue affects more than 60% of pulmonary sarcoidosis patients and is associated with worse shortness of breath, daytime sleepiness, anxiety and depression, catastrophizing, functional impairments, and quality of ... Read more

June 23, 2020June 19, 2020

DIY Project Drills Home Important Sarcoidosis Lessons

Columns, Invisible Chaos - a Column by Athena Merritt

A pile of boards and bolts stood before me as the first inkling of doubt crept in. Gathering what tools I could find — a small hammer and two ... Read more