August 21, 2019August 16, 2019

Can an Infrared Sauna Help Minimize Your Sarcoidosis Pain?

Columns, Life Altered - a Column by Kate Spencer

I had not heard of an infrared sauna before a practitioner told me about the device. Early in the process of diagnosing my sarcoidosis, it was suggested as a ... Read more

August 20, 2019August 15, 2019

Why I Said Goodbye to Twitter

Columns, Invisible Chaos - a Column by Athena Merritt

Last month, I decided to take a break from Twitter. It is the only social media site I use, despite the grumblings of Facebook-obsessed family and friends. My only ... Read more

August 20, 2019August 20, 2019

Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

News

Imagine living your whole life with a painful disease so rare that only 25 others worldwide have what you have. And that you’re one of just six such people ... Read more

August 19, 2019August 19, 2019

Sarcoidosis Educational Event Set for Saturday at University of Cincinnati

News

An educational conference for people with sarcoidosis and those close to them will be held at the University of Cincinnati this Saturday, featuring doctors with expertise in this disease, presentations, and ... Read more

August 16, 2019August 15, 2019

Small Gestures Remind Me to Give Thanks Despite Sarcoidosis

Columns, No Tears for Sarcoidosis - a Column by Charlton Harris

In all things, give thanks. I heard this saying regularly while growing up. My mother told my brother and me that we should be thankful for every life experience. ... Read more

August 14, 2019August 12, 2019

An Art Class Made My Bad Day Better

Columns, Life Altered - a Column by Kate Spencer

It was what I least felt like doing that Saturday morning: learning something new and being among a group of people. But the friend who urged me to attend ... Read more

August 13, 2019August 9, 2019

The High Cost of Waiting for Generic Alternatives

Columns, Invisible Chaos - a Column by Athena Merritt

Weeks after getting a script for what I hoped would be a cheaper alternative to Restasis (cyclosporine emulsion), I was reminded of why so many prescription medications are unaffordable. ... Read more

August 12, 2019August 12, 2019

Analysis Highlights Importance of Risk Assessment in Cardiac Sarcoidosis

News

A new statistical analysis of Finland’s nationwide cardiac sarcoidosis (CS) registry found that sudden cardiac death plays a significant role in the outcome of CS patients, affirming the importance ... Read more

August 9, 2019August 7, 2019

When Life Interrupts, Stick with Your Plan

Columns, No Tears for Sarcoidosis - a Column by Charlton Harris

All too often, life gets in the way of living. That makes it hard to stick with your life’s plan. Like most people, I had a plan for my ... Read more

August 7, 2019August 5, 2019

I’m Trying Tai Chi to Help Manage My Health Challenges

Columns, Life Altered - a Column by Kate Spencer

Before sarcoidosis hit me, I was a Pilates enthusiast and practiced yoga, too. Between classes and my practice at home, I stayed rather active with these two forms of ... Read more

August 6, 2019August 2, 2019

My Love-Hate Relationship with Prednisone

Columns, Invisible Chaos - a Column by Athena Merritt

Twice in the past month, a charley horse in my right calf has ripped me from blissful sleep. Even though prednisone wasn’t to blame for the agonizing 4 a.m. wake-up ... Read more

August 5, 2019August 5, 2019

Jakafi Shows Promise for Treatment of Cutaneous Sarcoidosis, Report Says

News

Using Jakafi (ruxolitinib) to treat a woman with polycythemia vera (PV; a blood cancer) led to complete resolution of her cutaneous sarcoidosis, and to mild reduction of her lung nodules, ... Read more