Philadelphia summit to bring together sarcoidosis patients, experts
Free event Sept. 26 features educational programs for clinicians, patients
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Sarcoidosis patients, caregivers, healthcare professionals, and researchers in the Mid-Atlantic will have the opportunity to come together to strengthen sarcoidosis care and build support networks at a free summit on Sept. 26 in Philadelphia.
The Foundation for Sarcoidosis Research (FSR) is hosting the regional summit to allow patients to connect with specialists, learn more about the disease, and discuss approaches to diagnosis, treatment, and long-term management. Clinicians, meanwhile, will learn more about best practices in areas ranging from diagnosis to long-term management.
The summit features two separate programs, one for patients and care partners and the other for clinicians, and a shared networking lunch. Registration is free, with lunch and parking included. Since space is limited, advance registration is required, and participants are encouraged to register by Sept. 15.
“The FSR Regional Sarcoidosis Summit reflects our commitment to building stronger local communities of care by bringing together leading specialists alongside patients, care partners, and clinicians to learn from one another and improve lives,” Mary McGowan, FSR’s president and CEO, said in a foundation press release.
Educational focus
The program’s clinician event will feature evidence-based educational sessions on current best practices in diagnosis, treatment, multidisciplinary care, referral pathways, and long-term management of sarcoidosis.
The symposium aims to help healthcare professionals who encounter people with newly diagnosed or undiagnosed sarcoidosis better recognize the disease across multiple organs, use appropriate diagnostic strategies, coordinate care, and apply the latest approaches to treatment and monitoring to improve patient outcomes.
The patient and care partner event will cover topics ranging from understanding sarcoidosis and managing symptoms such as fatigue and pain, to staying active, navigating treatment options, and taking part in research. Geared toward people newly diagnosed with the disease as well as those who have been living with it, along with their family members, friends, support group leaders, and others, it will feature the opportunity to ask questions directly to sarcoidosis specialists and learn about FSR resources, including the FSR-SARC Patient Registry, volunteer opportunities, and support programs.
“Despite important advances in our understanding of sarcoidosis, patients continue to face challenges with timely diagnosis, access to specialized care, and navigating a complex multisystem disease,” said Rohit Gupta, MD, director of the sarcoidosis program at Temple University Hospital. “We hope these conversations translate into earlier recognition, better coordinated care, and ultimately better outcomes for people living with sarcoidosis.”
Misha Rosenbach, MD, director of the Cutaneous Sarcoidosis Program at Penn Medicine, said the summit provides an opportunity “to bring together patients, clinicians, and sarcoidosis experts to share best practices and answer burning questions — and help patients with sarcoidosis get the care they need.”
The summit is co-hosted by FSR, Jefferson Health, Penn Medicine, and Temple Health. Sponsors include pharmaceutical companies Keenova Therapeutics and Ani Pharmaceuticals, as well as the biotech company Xentria.
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