“Life is like riding a bicycle. To keep your balance, you must keep moving.” — Albert Einstein I was diagnosed with pulmonary sarcoidosis a year after my mother passed away. That was over 20 years ago. Afterward, I didn’t give a lot of critical thought to living…

I recently saw a post on social media that stated, “I’m a person who wants to do a lot of things trapped in a body that doesn’t.”  I felt this sentiment deeply; it was a perfect description of my life with sarcoidosis. I’ve always been someone who wants to…

“Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure.” — Marianne Williamson, “A Return to Love” Over the past few days, the negative impact of sarcoidosis has affected my emotions. It’s not uncommon for folks with this illness to…

Cardiac sarcoidosis affects slightly more women, but men with the disease are at higher risk of potentially fatal heart rhythm abnormalities, according to a study in Japan. The findings suggest more aggressive preventive treatment for heart problems may be warranted for men with cardiac sarcoidosis, the researchers noted in “…

The easiest thing to do in life is nothing. For whatever reason, that seems to be a safe space for all of us. I used to tell my son this all the time. Every day I try to do something so I don’t get caught in the web of…

Molecure is seeking permission from the U.S. Food and Drug Administration (FDA) to conduct a Phase 2 clinical trial of its oral treatment candidate OATD-01 in people with pulmonary sarcoidosis. The request came in the form of an investigational new drug application (IND) submitted to the FDA. Should…

Sarcoidosis patients who are male or carry a genetic variation called HLA-DRB1*07 are more likely to have lymphopenia — low levels of white blood cells called lymphocytes — a known risk factor for more severe disease. That is according to a study, “Peripheral blood lymphopenia in sarcoidosis…

Despite advances in testing, fewer than one of every six people evaluated for suspected neurosarcoidosis — sarcoidosis affecting the nervous system — received a definite diagnosis of the inflammatory disorder, according to a 30-year study in Sweden. A confirmed neurosarcoidosis diagnosis in those cases was made only following a…

Bellerophon Therapeutics is working toward launching a new Phase 2 trial to test INOpulse, its experimental device for inhaled nitric oxide, in people who develop pulmonary hypertension as a complication of sarcoidosis (PH-Sarc). The announcement was part of a company’s clinical program update that stated…

About six months with Acthar Gel were associated with greater therapeutic benefits than a placebo in people with pulmonary sarcoidosis receiving standard-of-care therapies, including glucocorticoids, data from a Phase 4 trial show. The benefits were sustained in those who continued treatment in an extension phase and became evident…