When living with a chronic health condition, challenges often seem to appear out of nowhere. After I was diagnosed with pulmonary sarcoidosis, I continued to do anything and everything I wanted to do. I rarely considered how my health might dictate my actions and abilities. Call it…

Top-line data from an ongoing Phase 2 trial testing Kinevant Sciences’ experimental therapy namilumab in adults with pulmonary sarcoidosis are expected in the second half of 2024. That’s according to a business update from Roivant Sciences, the parent company to Kinevant. Called RESOLVE-Lung (NCT05314517), the…

MRI scans of the heart may help in predicting the risk of cardiac sarcoidosis recurring after initial successful treatment, a study reports. A greater extent of scarred heart tissue prior to treatment, in particular, was associated with a five times higher risk of relapse. The presence of sarcoidosis only…

Death rates while waiting for a lung transplant are disproportionally higher among people with pulmonary sarcoidosis than for those with other lung disorders, a U.S. study shows. “Our research shows that further consideration needs to be given to how we classify patients with sarcoidosis and how we calculate their…

The Foundation for Sarcoidosis Research (FSR) is funding a new research project that aims to find biological markers that could help identify people with sarcoidosis who are at risk of developing advanced lung disease. The work will be led by Christen Vagts, MD, an early career physician scientist…

The U.S. Food and Drug Administration (FDA) has greenlit a month-old request by Molecure to begin a Phase 2 clinical trial of its investigational oral therapy OATD-01 in people with pulmonary sarcoidosis. The proof-of-concept study, which is ready to launch, according to Molecure, will be the first…

“Life is like riding a bicycle. To keep your balance, you must keep moving.” — Albert Einstein I was diagnosed with pulmonary sarcoidosis a year after my mother passed away. That was over 20 years ago. Afterward, I didn’t give a lot of critical thought to living…

I recently saw a post on social media that stated, “I’m a person who wants to do a lot of things trapped in a body that doesn’t.”  I felt this sentiment deeply; it was a perfect description of my life with sarcoidosis. I’ve always been someone who wants to…

“Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure.” — Marianne Williamson, “A Return to Love” Over the past few days, the negative impact of sarcoidosis has affected my emotions. It’s not uncommon for folks with this illness to…

Cardiac sarcoidosis affects slightly more women, but men with the disease are at higher risk of potentially fatal heart rhythm abnormalities, according to a study in Japan. The findings suggest more aggressive preventive treatment for heart problems may be warranted for men with cardiac sarcoidosis, the researchers noted in “…