Part of the reason I named this column “Run Your Own Race” is that I found (much to my great surprise) that running can easily be a metaphor for life. And when you have compromised lungs from sarcoidosis, running is also a fight for your life. In a…

African Americans with advanced-stage pulmonary sarcoidosis who are taking Acthar Gel (repository corticotropin injection) may see their symptoms ease and be able to reduce the use of other medications, according to new findings. The findings were pulled from a new subgroup analysis of a real-world study that…

aTyr Pharma is launching a Phase 3 clinical trial to evaluate the safety and effectiveness of efzofitimod (ATYR1923) in people with pulmonary sarcoidosis. Expected to begin later this year, the primary goal of the study — dubbed EFZO-FIT — will be a reduction in therapeutic corticosteroids, which…

A rare occurrence of sarcoidosis in male breast tissue was observed in an American man, according to a recent case report. The report, “A Rare Case of Sarcoidosis Involving Male Breast Tissue,” was published in the Cureus Journal of Medical Science. Sarcoidosis is characterized by…

I recently recorded my first episode as co-host of a podcast about arthritis — defining it, differentiating the various types, and discussing how it affects us. Our group of co-hosts included people living with rheumatoid arthritis (RA), Sjögren’s syndrome, non-radiographic axial spondyloarthritis, and sarcoidosis. I think we raised more…

It feels like something is missing for me this month. For the past two years, really. Before 2020, my Aprils were full of events, get-togethers, support, and connection with my sarcoidosis family. Now, we’re all in our own homes, saying again how much we miss each other as we get…

When I was diagnosed with sarcoidosis in 2013, I had no idea what was coming. Heck, I couldn’t even pronounce my condition (and truthfully, I still mispronounce it at times). All I knew was that I had red marks on my face, and my lungs were apparently in decline. Ah,…

Having an ultrasound of the neck may be useful for diagnosing certain cases of sarcoidosis — and for ruling out other similar conditions, a new study highlights. In fact, statistical models based on ultrasound measures used in the study were shown to accurately identify 90% of patients with and…

I’m grateful. On Rare Disease Day, and since, I’m grateful. On this day of consequence and nonsense, of war and peace, of movement and stagnation, of highest courts and lowest valleys, of pandemic and hope, I’m grateful. I’m even grateful for sarcoidosis, or at least my version of…

The risks of death and rejection after heart transplant for people with advanced cardiac sarcoidosis were similar to those of patients who had transplants for other types of heart disease, according to an analysis of a transplant recipient registry. These findings suggest that a heart transplant is a safe…