A recent episode of TV’s “Behind the Mystery” shared the journey of a sarcoidosis patient from diagnosis to treatment as a way to raise awareness of the emotional and medical challenges of living with this complex condition. The episode, shown on Lifetime on Dec. 6 and again Dec. 14,…
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A Phase 2 clinical trial is recruiting adults with chronic pulmonary sarcoidosis to investigate the safety and therapeutic potential of CMK389 in improving lung function. CMK389 is an investigational therapy, developed by Novartis, for the treatment of pulmonary sarcoidosis and atopic dermatitis. It was designed to inhibit interleukin 18,…
Most people living with sarcoidosis are overall satisfied with their health insurance provider and are not considering changing their medication, according to a U.S.-based survey conducted by Sarcoidosis News. However, roughly 1 in 3 survey respondents were dissatisfied with their quality of life, and more than a quarter…
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Yesterday, I made vegetable curry for dinner, and it was a big deal. Well, it was for me. I’ve never been much of a cook. When I was 15, I “wooed” my husband by burning a frozen pizza, so he knew what he was getting into when he chose to…
By the time this column is published, I will have seen my specialist at the Johns Hopkins Sarcoidosis Clinic in Baltimore, Maryland. Although I live in Brooklyn, New York, I still visit my specialist three times a year. Admittedly, technology and mobile apps make it easy to reach my…
The Foundation for Sarcoidosis Research (FSR) announced its newest initiative this month, the African American Women & Sarcoidosis National Campaign, to bring awareness to how this group is disproportionately affected by the disease and to educate people living with the disorder. African American women are three times more…
The sarcoidosis community took a serious hit when we learned of fellow warrior Rodney Reese’s passing on Sept. 25. A beloved husband, father, and grandfather, Rodney was also a friend, brother, and father figure to thousands of people living with sarcoidosis. We have lost a cherished member of our family.
A DNA sequencing technology called next-generation sequencing (NGS) may be used to detect tuberculosis (TB) rapidly and accurately — which could help in distinguishing it from sarcoidosis, a study suggests. While tuberculosis and sarcoidosis share many symptoms, the therapies for the two diseases differ greatly, according to researchers.
Back when I was healthy, I’d work up to three jobs at a time and volunteer on top of that. My husband’s work schedule was based on seniority, and because he was relatively new to his job, he usually had crummy hours and even crummier days off. He was coming…