A professor at Northwestern University has been awarded a $50,000 American Thoracic Society (ATS)/Mallinckrodt Pharmaceuticals Research Grant to study the role of immune macrophages in the development of sarcoidosis. Sarcoidosis is a complex immune disease characterized by the accumulation of immune cells such as macrophages,…

“If you’re not nervous, you’re not paying attention.” – Miles Davis Over the past few months, I’ve been documenting my visits to a new hospital, where I’m receiving a second opinion regarding my pulmonary sarcoidosis. Any treatments or therapies this team can offer would be welcome,…

I’ve often felt like I’m just along for the ride when it comes to sarcoidosis. I’d wake up wondering what it would let me do. But a change I made in late February has given me a new outlook. It happened by accident. Maybe you read my glorious account…

The last day of pulmonary rehab is upon me. Truth be told, it’s bittersweet. This will be my third time in the rehab program. A few years ago, my pulmonary nurse practitioner suggested it might be a good program for me. She explained…

aTyr Pharma, which is developing a candidate therapy for pulmonary sarcoidosis called ATYR1923, has appointed Andrea Wilson — a sarcoidosis patient and advocate who co-founded the Foundation for Sarcoidosis Research (FSR) — as a patient advisor. “We are pleased during Sarcoidosis Awareness Month to welcome Andrea, a…

“I am not what happened to me, I am what I choose to become.” — Carl Jung I was browsing the internet last week looking for stock videos to help out a friend who was producing a video package for his work. We’ve been friends for…

From taking part in a virtual endurance challenge to joining in a virtual cooking class, to watching several speaker presentations, advocates are set to mark Sarcoidosis Awareness Month, observed each April. World Sarcoidosis Day will be celebrated on April 13. Awareness and education are crucial to increasing the recognition,…

I stumbled upon sarcoidosis in 2002, and still wake each morning wondering what’s in store. It doesn’t follow a set path when it invades our bodies, making it just as baffling today as when I was first diagnosed. If I had named this disease, I would have called it “everything…

Is the image of the person looking back at you in the mirror someone who’s fractured, broken, or like a work in progress? I find that to be an interesting question, particularly for my life. I remember when I was diagnosed with sarcoidosis…

April is Sarcoidosis Awareness Month and the Foundation for Sarcoidosis Research (FSR) is holding a virtual Memorial Monday Candlelight Vigil on April 26 to honor those who have died from the rare disease. The hour-long webinar starts at 5 p.m. CST and will feature a special tribute presentation and speakers. The…