I am so tired of the overly used phrases “the new normal” and “we’re all in this together.“ No! These are not the truths we live with. Only other folks in the sarcoidosis…

A large-scale analysis of proteins in bronchoalveolar lavage cells and fluid isolated from the lungs of people with sarcoidosis identified several different biological pathways not found in healthy individuals, a study reports. The findings may help discover unknown disease mechanisms underlying the…

Discipline is a trait that takes determination to mature into an art. By nature, we’re not disciplined creatures. This makes our life’s journey more eventful, especially living with sarcoidosis. When I entered this fight, I didn’t know what I would be up…

A grant from the Foundation for Sarcoidosis Research (FSR) will fund the development of a new mouse model of sarcoidosis, which could aid in understanding how the disease develops and ultimately serve as a platform for testing potential treatments. The FSR’s Small Grant program provides up to $25,000…

Over the past few weeks, I had appointments with both of my pulmonologists involving follow-up consults and pulmonary function tests (PFTs). My new pulmonologist specializes in sarcoidosis and pulmonary hypertension, making…

Although neurological symptoms are rare in people with sarcoidosis, physicians should consider neurosarcoidosis in cases of myelitis and hydrocephalus, as prompt steroid treatment can improve patient outcomes. The recommendation comes from researchers at the Jersey Shore University Medical Center in a recent case study, “Hydrocephalus…

A chronic health condition like pulmonary sarcoidosis can have a mental stranglehold on a person, causing fear, anxiety, and stress that we must learn to live with. Such a stranglehold can hold you hostage both mentally and physically.

Pediatric-onset sarcoidosis may require long-term treatment, and can be associated with severe consequences in adulthood, according to a French study. Of 52 adults with sarcoidosis as children, half were still being treated and four had uncontrolled disease, its researchers reported. The study, “Child–Adult Transition in Sarcoidosis: A…

This weekend I’ll be celebrating an anniversary. Actually, it’s more like a milestone. Although it seems peculiar to celebrate it, I’m doing so with plans to become a better person. This weekend marks the third anniversary of my first spontaneous pneumothorax…

New diagnostic guidelines for cardiac sarcoidosis yield a higher number of diagnoses and identify more cases of isolated cardiac sarcoidosis (iCS), according to a study in Japan. In cardiac sarcoidosis, inflammatory clusters of white blood cells — called granulomas — affect the heart but can also affect other…