Results of a Phase 1b/2a clinical study evaluating ATYR1923 in people with pulmonary sarcoidosis are likely to be delayed due to the COVID-19 pandemic, its developer, aTyr Pharma, announced. ATYR1923 is a first-in-class therapy being developed to possibly different types of interstitial lung diseases (ILDs) — a…

I read a magazine article years ago shortly after my sarcoidosis diagnosis. It covered the topic of the “shoulds” in life. The article defined a “should” as an item such as good health, the ability to work a full-time job, having strong and supportive relationships, and being able…

After all of my efforts to remain germ-free I was reminded of a couple things this past week. The first is that hand soap and sanitizer don’t make me invincible. The second is that being homebound so much over the years while battling sarcoidosis  has given me a “particular…

This has been a rough week, to say the least. Last week, I lost one of my oldest aunts. She was my mother’s oldest sister and she meant a lot to me. She lived in Washington, D.C., and she let me live with her when I took a…

Boehringer Ingelheim‘s Ofev (nintedanib) has been approved in the U.S. as the first treatment for chronic fibrosing interstitial lung diseases (ILDs) with a progressive phenotype. This approval by the United States Food and Drug Administration (FDA) includes sarcoidosis, autoimmune ILDs, unclassifiable ILDs, chronic hypersensitivity pneumonitis,…

Take a minute to think about what’s really important in your life. I find myself doing that more often than I used to. I often think about the things that mean the most to me like family, health, physical abilities, and friendships, but…

I began the year with good intentions. I simply wanted to invite more fun and less stress into my life. The first sign that my intentions for 2020 were going awry occurred on a work-related road trip with my husband. I awoke the first morning away with a pounding…

I have a rare health condition called sarcoidosis, which causes extreme fatigue, joint pain, and difficulty breathing. It can affect all of the major organs, including the lungs, heart, eyes, and skin. Sarcoidosis affects about five in 100,000 Caucasians in the U.S. For African Americans, that number jumps…

When I stumbled upon sarcoidosis in 2002, I was told it was rare for it to cause chronic health issues. What I wasn’t told was that the disease was rare. I haven’t come face to face with a single person with sarcoidosis since my diagnosis. Nor have I met…