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During April, National Sarcoidosis Awareness Month, the Society for Cardiovascular Magnetic Resonance (SCMR) is promoting the use of cardiac imaging to non-invasively assess changes in patients’ heart tissue and overall cardiac function. Sarcoidosis is marked by an overreactive immune system and the resulting formation of small clumps of inflammatory…

A sarcoidosis patient and ardent supporter of the Foundation for Sarcoidosis Research (FSR) was dubbed a “warrior” by the nonprofit for competing in the Ironman 70.3 Chattanooga triathlon, in Tennessee, to raise awareness of the rare condition as well as funds to fight it. The competition, held…

Yesterday, I made vegetable curry for dinner, and it was a big deal. Well, it was for me. I’ve never been much of a cook. When I was 15, I “wooed” my husband by burning a frozen pizza, so he knew what he was getting into when he chose to…

A pile of boards and bolts stood before me as the first inkling of doubt crept in. Gathering what tools I could find — a small hammer and two old screwdrivers — didn’t boost my confidence. It was seven steps to creation. What it turned out to be was a…

A chronic health condition like pulmonary sarcoidosis can have a mental stranglehold on a person, causing fear, anxiety, and stress that we must learn to live with. Such a stranglehold can hold you hostage both mentally and physically.

Nearly 350 people joined a virtual public meeting that the Foundation for Sarcoidosis Research (FSR) ran as part of a U.S. Food and Drug Administration (FDA) program to discuss the unmet needs and challenges faced by those living with sarcoidosis. In the Externally Led Patient-Focused Drug Development meeting,…