Today is my infusion day, and I’m excited and hopeful. I’ve been taking Inflectra (infliximab-dyyb) for about four months. Before that, I was on Remicade (infliximab), until my insurance company suddenly stopped approving it, compelling me to switch. The U.S. Food and Drug Administration considers the two to…

People with autoimmune diseases such as sarcoidosis are not at higher risk of worse outcomes following lung or heart-lung transplants compared with people without such diseases, a new single-center study shows. The findings that autoimmune patients fare as well as others following such transplants refute the long standard approach…

This month marks two and a half years that I’ve lived in New York City after moving here from Maryland. Although we’ve been living amid the COVID-19 pandemic for much of that time, I can certainly see why there are so many songs about this city. It is a…

“I am thankful to all those who said no. It’s because of them, I did it myself.” — Wayne W. Dyer Now that we’re approaching the thick of the holiday season, it’s time for us sarcoidosis warriors to be thankful for what we have and what…

I’ve never been very good with boundaries. I’ll respect yours, sure. But when it comes to setting my own and sticking to them, not so much. Over the years, this has taken its toll on relationships, employment, and even my health. Kerry at Disney World with her mobility…

A $600,000 grant will help the Foundation for Sarcoidosis Research, known as FSR, advance investigations into this rare disease and address health disparities seen among African Americans with sarcoidosis. The three-year grant is part of the Chan Zuckerberg Initiative’s Rare as One Project. “The Foundation for Sarcoidosis…

Recently, my former brother-in-law Johnny invited me to his house for the weekend to spend some much-needed time with friends. He lives about 40 miles outside of Philadelphia, and I love visiting him because his home sits on a hill on a quiet cul-de-sac. I expected it to be a…

Thanksgiving has always been one of my favorite holidays. It’s not about material things, or one religion over another, or one-upping anyone with decorations or extravagant gifts. It’s simply a day of gratitude. A day for friends, family, football, and of course,…

As I write this, today is my best friend’s birthday. If I know him well, I suspect that on this day (I’m writing this on Tuesday), he is both externally happy and internally reflective. I suppose it is natural to take stock of life — both the good and the…

Two university professors have each been awarded $25,000 small research grants from the Foundation for Sarcoidosis Research (FSR) to pursue projects aimed at improving outcomes for people with sarcoidosis. Researcher Maneesh Bhargava, MD, PhD, of the University of Minnesota, will use the grant to focus on inflammation in…