A woman in her 50s in Florida who presented with recurrent ministrokes was eventually diagnosed with sarcoidosis only affecting the heart, called isolated cardiac sarcoidosis, a case study reports. “This case highlights the need to consider [cardiac sarcoidosis] as a potential cause of [stroke-like] events in patients with few…

Have you ever read something and just said to yourself, “Yes. YES. Oh my God, yes. 100% yes. So much yes!”? Have you read something that made you feel gutted — both out of anger that anyone should be made to feel a certain way and sadness because you feel…

Nonsteroidal immunosuppressants may be a treatment option for people with cardiac sarcoidosis who don’t respond well to corticosteroids or have side effects from using them, a Japanese study suggests. While nonsteroidal immunosuppressants reduced the need for corticosteroids and how active sarcoidosis lesions were for some patients, more research is…

As I write this, my heart is racing. My head is pounding. I feel like my world is spinning so fast I can’t keep up. I’ve actually just gotten good news, but the anxiety that preceded it takes much longer to subside. I generally subscribe to the “hope for the…

High blood calcium levels, or hypercalcemia, may in rare cases be a symptom of sarcoidosis, according to a case report from Morocco. Steroid medications helped ease the symptom for a man with severe hypercalcemia as a main complication of sarcoidosis of the lungs, or pulmonary sarcoidosis, according to…

Enrollment in aTyr Pharma’s pivotal Phase 3 EFZO-FIT clinical trial, testing the effectiveness and safety of efzofitimod in people with pulmonary sarcoidosis, is now complete. The study exceeded its target number of participants, recruiting 268 patients in 85 centers across the U.S., Europe, Japan, and Brazil. Top-line data are expected…

Being Black or having restrictive lung disease, where it’s hard to take in enough air in a breath, were factors that predicted faster lung function declines in people with pulmonary sarcoidosis in a recent U.S. study. “This study can inform future prospective studies to further explore pulmonary function phenotypes…

A woman who underwent a heart transplant for cardiac sarcoidosis later showed signs of sarcoidosis in the brain, a condition known as neurosarcoidosis, highlighting the need for better protocols to monitor and treat sarcoidosis patients after a transplant, scientists report. Immunosuppressive treatments helped to ease the woman’s neurological…

One of the most stressful aspects of rare disease life is visiting a new doctor. You’d think we’d be used to it — after all, we do it often enough. But between the sheer volume of information we have to share and the limited time we have to share…

A new modeling approach that incorporates standard tests and clinical signs can identify people who have sarcoidosis-associated uveitis (SAU), or inflammation of the eye, a new study shows. Based on this analysis, data showed a combination of eye tests could distinguish SAU from non-SAU patients with a high degree…