I never know when it will happen. Someone speaks to me and their words land in my ears as if they are in some foreign language or secret alien code. I stand there with a blank look as my brain races to decipher the meaning of their words. If I’m…

“At least you look good.” I often hear this statement, or something close to it. I am confident the words are sincere and said with the best of intentions. Someone who tells me I look good, despite the fact that I have sarcoidosis, is hoping to make me feel…

Physicians often see us at our worst. Remembering to be mindful of how we treat them could go a long way to help bolster their thinning ranks, which results in fewer hours. Physician turnover and the reduction of clinical hours in the United States costs an estimated $4.6 billion annually,…

My calves and ankles were thick and swollen from erythema nodosum. I was struggling with a cough and fatigue daily. We were still waiting for a formal diagnosis, and though it felt like we were getting closer, the delay was difficult to cope with. My primary care physician suggested…

The power of perseverance Marvel Studios is rereleasing “Avengers: Endgame” with new footage this Friday, June 28, in a final push to topple the box office record set by “Avatar.” Whether you are among those who consider the move to be thrilling, desperate, or a cash grab, it’s an…

This has been an interesting week. This time last year, I was released from the hospital about three days before Father’s Day. I was excited to be coming home after being hospitalized for four weeks with my third spontaneous pneumothorax. This year, I…

All too often in my management of sarcoidosis, I find myself falling into survival mode and living moment to moment, just trying to stave off the worst. Various factors will nudge me there. The arrival of a new symptom, worsening of an existing one, or a new obligation. Since…

In the midst of a medical crisis, my long-time friend made a suggestion. She advised me to find a calming activity that would help pass the time on the road to recovery. Since she’s both a friend and a licensed clinical social worker, I trusted her input. Not surprisingly, my…

The immediacy of society seems to be a bit out of control. Everyone seems like they’re on the clock for one reason or another. I’ve noticed this for the past several years, and it still surprises me how much people are in such a hurry for everything. The…

I spent months trying to schedule an appointment with a pulmonologist. Finally, I found one in another state. Unfortunately, I had to pay out of pocket for the visit. At this point, however, a potential answer seemed well worth the expense. The pulmonologist listened to my breathing, took note…