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With 8 a.m. closing in on a weekday, diners had already filled tables set up in a parking lot on a recent crisp morning. Just a five-minute walk away, chairs remained upside down at an eatery that hasn’t served meals since mid-March. The pandemic has forced both restaurants to a…

Infliximab effectively treats neurosarcoidosis, but patients may see their disease return (relapse) over time, according to results of a new study. The study, “Long-Term Outcomes Of Refractory Neurosarcoidosis Treated With Infliximab,” was published in the Journal of Neurology. Neurosarcoidosis (sarcoidosis affecting the nervous system) may be resistant to…

“Calvin, put that doughnut down!” someone said to me about nine years ago, poking my stomach like I was the Pillsbury Doughboy. It was a funny joke that made me laugh, but it was also true. Over time, I had gained quite a bit of weight and didn’t…

I was watching the “Morning Joe” talk show this morning — well, not really watching; it was more like background noise while I worked on a few things — when something caught my eye (or, more accurately, my ear). The hosts were introducing a guest who’d just…

I went to bed in the fourth quarter of “Monday Night Football” with my brother Antony’s words haunting me. My favorite team was losing, and I knew what he’d say about abandoning them for sleep: “There’s a lot of game left.” Antony believes in comebacks, and so do I,…

I spent months trying to schedule an appointment with a pulmonologist. Finally, I found one in another state. Unfortunately, I had to pay out of pocket for the visit. At this point, however, a potential answer seemed well worth the expense. The pulmonologist listened to my breathing, took note…

Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, D.C., couldn’t come at a better time, says Marshall Summar, MD, chairman of NORD’s board of directors. “The pace of discovery in rare diseases has gone from brisk to hypersonic,” Summar told Bionews Services, publisher…

The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government officials is planned for April 10–12 in a Washington, D.C., suburb. Some 1,200 people have already registered to attend the World Orphan Drug Congress (WODC) USA 2019, set to take place at the Gaylord National Harbor…