All too often in my management of sarcoidosis, I find myself falling into survival mode and living moment to moment, just trying to stave off the worst. Various factors will nudge me there. The arrival of a new symptom, worsening of an existing one, or a new obligation. Since…

The Foundation for Sarcoidosis Research (FSR) is launching a series of mindfulness and meditation workshops — all as free, live webinars — to support people with sarcoidosis and those caring for them. The workshop series will focus on discussing the physical and mental benefits of meditation and…

In late 2012, Rhonda Underhill started having headaches and extreme fatigue. She attributed it to the long hours she was working as a general manager for a small business in Maryland. Rhonda Underhill (Courtesy of The Foundation for Sarcoidosis Research) After rounds of MRIs, misdiagnoses,…

Patients with sarcoidosis who are exposed to glucocorticoids have an increased risk of developing osteoporosis and experiencing bone fractures, according to the results of a new study. However, people without sarcoidosis who receive glucocorticoid treatment have a similar risk, suggesting it is not the disease itself that increases this risk,…

When it comes to managing sarcoidosis, rain feels like another obstacle in my day. And Mother Nature has been pouring down plenty of it in the Philadelphia area lately. Give me a day or two of wet weather and it’s unpleasant, but I manage. But being stuck in a seemingly…

If you have become disabled as a result of sarcoidosis or another health condition, searching for ways to save on medical and prescription costs is often at the top of your mind. But there are numerous other discounts, ranging from travel to lodging, that you may be overlooking. Travel…

Treatment with rituximab can lead to meaningful improvements for some people with neurosarcoidosis affecting the brain and/or spinal cord — particularly those with hard-to-treat disease and involvement limited to some nerves. That’s according to a retrospective study of 19 people treated across four U.S. centers, which showed that…