Writer’s block: when you want (or have) to write something but the words just won’t come to you. It could…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by 🦋 Kerry Wong
Dearly beloved, Earlier this month, my husband and I attended our niece’s wedding. Later this month, we’ll renew our vows…
On any given day, at any given moment, we can see signs of conflict all around us. Wars, protests, he…
Last week, I attended a friend’s fundraiser with my husband, our moms, and my sister. Throughout the evening, we talked…
Note: This column discusses an upcoming FDA-NIH Rare Disease Day event, which planned to bring together members of the rare…
I recently came across a blog post on MedPage Today titled “A Letter to Patients with Chronic Illness.” Although it…
Along with so many others around the world, I’ve spent the past two months utterly obsessed with the movie version…
It’s pretty rare to see sarcoidosis portrayed on a television show that’s not a medical drama. It’s even rarer…
Oops, I did it again/ I fell on the floor/ I’m in so much pain/ (Oh baby, baby)/ Now my…
“What are you trying to do — fun me to death?” I asked my husband when he suggested another road…