“This is a true story based on a lie.” That’s how each episode of “Apple Cider Vinegar,” a…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
I have a confession to make: I don’t read all my email. I try to, but it can be overwhelming.
Sitting at the infusion center for my intravenous immunoglobulin (IVIG) treatment, I opened up a Google Docs tab on my…
I started writing this column a few weeks ago when I was angry. I was irate, it was festering, and…
A few days ago, I saw a post on Bluesky that made me chuckle … and then it made me…
“When did the pain start?” That’s a fairly straightforward question with an uncomplicated answer for most people: “I fell last…
Last week, my husband and I took a road trip to see the Yankees play the Reds in Cincinnati, checking…
This month, I watched the 78th annual Tony Awards, looking forward to performances from the year’s top shows. I’m always…
Writer’s block: when you want (or have) to write something but the words just won’t come to you. It could…
Dearly beloved, Earlier this month, my husband and I attended our niece’s wedding. Later this month, we’ll renew our vows…