I started writing this column a few weeks ago when I was angry. I was irate, it was festering, and…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
A few days ago, I saw a post on Bluesky that made me chuckle … and then it made me…
“When did the pain start?” That’s a fairly straightforward question with an uncomplicated answer for most people: “I fell last…
Last week, my husband and I took a road trip to see the Yankees play the Reds in Cincinnati, checking…
This month, I watched the 78th annual Tony Awards, looking forward to performances from the year’s top shows. I’m always…
Writer’s block: when you want (or have) to write something but the words just won’t come to you. It could…
Dearly beloved, Earlier this month, my husband and I attended our niece’s wedding. Later this month, we’ll renew our vows…
On any given day, at any given moment, we can see signs of conflict all around us. Wars, protests, he…
Last week, I attended a friend’s fundraiser with my husband, our moms, and my sister. Throughout the evening, we talked…
Note: This column discusses an upcoming FDA-NIH Rare Disease Day event, which planned to bring together members of the rare…