🦋 Kerry Wong, Columnist —

Kerry Wong lives in Westchester, New York, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015 after an eight-year search for answers. Though medically retired, Kerry remains an active volunteer, turning her focus toward advocacy for the sarcoidosis, arthritis, and chronic illness communities. She is a co-host of the AiArthritis Voices 360 Talk Show and the Dazzle4Rare rare disease awareness campaign. She is currenty working on “Kaleidoscope,” a collection of rare disease stories. Through her column, Kerry shares how chronic illness has led to transformation and invites readers to float with her, “like a buttahfly.”

Articles by Kerry Wong

Never Give Up — Except on Being a Caterpillar

“‘How does one become a butterfly?’ she asked pensively. “‘You must want to fly so much that you are willing to give up being a caterpillar.'” — Trina Paulus, “Hope for the Flowers” Winners never quit, and quitters never win. When the going gets tough, … you know…

Finding Comfort in the Rare Disease Community

Before I was diagnosed with sarcoidosis, I’d never heard of this disease. No one I knew had heard of it, either, except, as my mom insists, in the differential diagnosis on the TV procedural “House, M.D.” Even then, it was never the answer. No one actually had sarcoidosis.

How to Have a Safe Date Night With Sarcoidosis

I’ve joked before that “middle-aged date night” entails my husband and me scheduling our annual physicals together. First the doctor’s office, then the lab, then maybe a stop for lunch before we head home for a nap. Things change for everyone as they get older, but it feels like I’ve…