I recently came across a blog post on MedPage Today titled “A Letter to Patients with Chronic Illness.” Although it…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by 🦋 Kerry Wong
Along with so many others around the world, I’ve spent the past two months utterly obsessed with the movie version…
It’s pretty rare to see sarcoidosis portrayed on a television show that’s not a medical drama. It’s even rarer…
Oops, I did it again/ I fell on the floor/ I’m in so much pain/ (Oh baby, baby)/ Now my…
“What are you trying to do — fun me to death?” I asked my husband when he suggested another road…
Have you ever read something and just said to yourself, “Yes. YES. Oh my God, yes. 100% yes. So much…
As I write this, my heart is racing. My head is pounding. I feel like my world is spinning so…
One of the most stressful aspects of rare disease life is visiting a new doctor. You’d think we’d be…
Years ago, I heard someone in the chronic illness community say they were “medically retired.” It was before I had…
I think I need a Bubble Wrap suit. Yep — a full-sized, head-to-toe suit made of industrial-strength protective Bubble Wrap.