Have you ever read something and just said to yourself, “Yes. YES. Oh my God, yes. 100% yes. So much…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
As I write this, my heart is racing. My head is pounding. I feel like my world is spinning so…
One of the most stressful aspects of rare disease life is visiting a new doctor. You’d think we’d be…
Years ago, I heard someone in the chronic illness community say they were “medically retired.” It was before I had…
I think I need a Bubble Wrap suit. Yep — a full-sized, head-to-toe suit made of industrial-strength protective Bubble Wrap.
Early on in my chronic illness journey, before I knew I had sarcoidosis, I was struggling. I desperately sought…
Call me naive. For years, I never understood why my cousin posted the time on Facebook every afternoon. I thought…
I think I’m the least prepared I’ve ever been for Sarcoidosis Awareness Month. Or perhaps I’m the least busy…
When I was in high school, my mom and I began an ear-piercing competition. When I came home for breaks…
When I woke up this morning, my husband was in the living room watching “Star Trek II: The…