Early on in my chronic illness journey, before I knew I had sarcoidosis, I was struggling. I desperately sought…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
Call me naive. For years, I never understood why my cousin posted the time on Facebook every afternoon. I thought…
I think I’m the least prepared I’ve ever been for Sarcoidosis Awareness Month. Or perhaps I’m the least busy…
When I was in high school, my mom and I began an ear-piercing competition. When I came home for breaks…
When I woke up this morning, my husband was in the living room watching “Star Trek II: The…
I was watching the “Morning Joe” talk show this morning — well, not really watching; it was more…
Maintenance. It’s a concept I’m quite familiar with. Years ago, when I was following (and later working for) a…
Whether I’m resting after a long day at the infusion center or busy working on my next big…
“’Hang on a sec, hon,’ I called to my husband in the car, at the airport, and again on the…
Bracelets with messages meant just to cheer me, Wireless earbuds when anyone’s near me, Cute comfy PJs without…