“Be who you are and say what you feel, because those who mind don’t matter, and those who matter don’t…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
“Baseball is 90% mental. The other half is physical.” — New York Yankees Hall of Famer Yogi Berra It seems…
I recently saw a post on social media that stated, “I’m a person who wants to do a lot of…
When I told my primary physician a few months ago that I was diagnosed with avascular necrosis (also known…
“People will forget what you said, people will forget what you did, but people will never forget how you made…
My husband and I just celebrated our 23rd wedding anniversary. And our 18th. And our 13th, and our eighth, and…
“What’s in a name? That which we call a rose/ By any other word would smell as sweet.” — Juliet…
“Sarc-a-what?” That’s usually the response we get when we tell someone we have sarcoidosis. “What’s that?” they ask, and…
As I stared into my closet this morning, a bright green shirt called out to me. It is St. Patrick’s…
When I was diagnosed with “some kind of arthritis, probably autoimmune” in 2011, I wanted to learn all I could.