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Learning Which Numbers Really Matter

It’s easy to forget what’s most important when living with a chronic health condition. I reflect on this often, especially when I’m working out at the gym or trying to do “normal” activities. Achieving a sense of normalcy with sarcoidosis is difficult, especially during a pandemic. A shifting sense…

I’m Learning to Give Myself a Break

My last doctor’s appointment of 2021 was on Dec. 30 and involved a six-minute walk test and a follow-up with my pulmonologist. The walk test didn’t seem to go well, as I required more supplemental oxygen than I usually do while working out at the gym. I explained this to…

Sarcoidosis Made My Close Call With COVID-19 Even Scarier

We’re all familiar with the evolutionary fight-or-flight response. When faced with stress or danger, we go through physiological changes that enable us to either battle a predator (fight) or escape the situation (flight). However, there is another option, although we probably wouldn’t choose it willingly: to freeze. That’s…

COVID-19 and Inequities in Access to Treatment

“Of all the forms of inequality, injustice in healthcare is the most shocking and inhumane,” Martin Luther King Jr. said in 1966. I have COVID-19. As of this writing, I am one of 326 million people who have contracted this disease worldwide. As a pulmonary sarcoidosis fighter who…

My Monthly Infusion Always Brings Hope

Today is my infusion day, and I’m excited and hopeful. I’ve been taking Inflectra (infliximab-dyyb) for about four months. Before that, I was on Remicade (infliximab), until my insurance company suddenly stopped approving it, compelling me to switch. The U.S. Food and Drug Administration considers the two to…

Choosing Between the 2 Faces of Sarcoidosis

Like a coin, there are two sides to every story. A disagreement involves two different perspectives. A face has two cheeks. And sarcoidosis has two faces. I was reminded of this while helping an old friend and his son last week. My friend called me two weeks ago and…