Like a coin, there are two sides to every story. A disagreement involves two different perspectives. A face has two cheeks. And sarcoidosis has two faces. I was reminded of this while helping an old friend and his son last week. My friend called me two weeks ago and…
Columns
I’ve been reading through my recent columns, and I noticed that I frequently mention how tremendously helpful therapy is. There are a few reasons for that. When I started my blog in 2010, my goal was to help people. I thought that sharing how I got through difficult times…
This month marks two and a half years that I’ve lived in New York City after moving here from Maryland. Although we’ve been living amid the COVID-19 pandemic for much of that time, I can certainly see why there are so many songs about this city. It is a…
“I am thankful to all those who said no. It’s because of them, I did it myself.” — Wayne W. Dyer Now that we’re approaching the thick of the holiday season, it’s time for us sarcoidosis warriors to be thankful for what we have and what…
I’ve never been very good with boundaries. I’ll respect yours, sure. But when it comes to setting my own and sticking to them, not so much. Over the years, this has taken its toll on relationships, employment, and even my health. Kerry at Disney World with her mobility…
Recently, my former brother-in-law Johnny invited me to his house for the weekend to spend some much-needed time with friends. He lives about 40 miles outside of Philadelphia, and I love visiting him because his home sits on a hill on a quiet cul-de-sac. I expected it to be a…
Thanksgiving has always been one of my favorite holidays. It’s not about material things, or one religion over another, or one-upping anyone with decorations or extravagant gifts. It’s simply a day of gratitude. A day for friends, family, football, and of course,…
As I write this, today is my best friend’s birthday. If I know him well, I suspect that on this day (I’m writing this on Tuesday), he is both externally happy and internally reflective. I suppose it is natural to take stock of life — both the good and the…
Yesterday, I made vegetable curry for dinner, and it was a big deal. Well, it was for me. I’ve never been much of a cook. When I was 15, I “wooed” my husband by burning a frozen pizza, so he knew what he was getting into when he chose to…
By the time this column is published, I will have seen my specialist at the Johns Hopkins Sarcoidosis Clinic in Baltimore, Maryland. Although I live in Brooklyn, New York, I still visit my specialist three times a year. Admittedly, technology and mobile apps make it easy to reach my…
Recent Posts
- We need to keep sharing our stories and reject the ‘sickfluencer’ narrative
- Cell-released proteins may predict sarcoidosis treatment response
- Registry study finds heart sarcoidosis outcomes vary by feature
- Critical conversations: Why talking about our medications is essential
- Study challenges theory of microbes as sarcoidosis cause
- FDA, developer align on protocols for trial of pulmonary sarcoidosis drug
- Large study ties sarcoidosis to risk of permanent liver scarring
- Reflecting with gratitude on what sarcoidosis has brought to my life
- Lingering heart inflammation tied to cardiac sarcoidosis relapse risk
- Study identifies three genes that may influence sarcoidosis risk